"Gluten free diet and prescriptions"

About: Adult community services / Nutrition and dietetics

(as the patient),

The system changed from being able to order via your own doctor to a central ordering service.

There was no consultation with patients and the system was introduced without much information.

The current system works Ok for me. I order my products once a month having mainly flour, bread or pasta depending on the quantity you can have. Flour and pasta count as 2 units each and bread can only be order in units of 8. So you could have 8 small sliced loaves, 1 packet of flour and 1 packet of pasta.

Under the old system I might only order flour twice a year but now I make sure I order something every month and up to the maximum points.

I buy additional items e. g. extra bread, crackers etc as sometimes the prescription is not enough for a month.

I understand that the prescription is now free to all those diagnosed with Coeliac Disease and not just the over 60s so that is a good change for everyone.

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Responses

Response from Grace Oldfield, Patient Involvement Manager, Rotherham NHS Foundation Trust

Dear ancestry, thank you for your posting on the Patient Opinion web site. It is good to know you find the system works OK for you to obtain your products.

The budget for products was transferred from the GPs to the Nutrition & Dietetics Service to mirror another project that had been successful. The orders you received should have been continued via your GP until you were notified of the change. I am sorry if this did not happen.

The budget available is for patients who have a confirmed diagnosis no matter what age and therefore we have to be fair and equitable for all patients giving them the same support.

With best wishes,

Grace

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