"Confused, worried, possibly forgotten and getting..."

About: Milton Keynes Hospital

What I liked

I have been treated for a variety of ailments over the years and I have mostly been very happy with my treatment - which makes this episode all the more surprising.

What could be improved

In September 2011, as a result of a biopsy taken in August, I was diagnosed with prostate cancer. Since I had a PSA of 16 five years ago this did not come as a surprise, the only surprise was the time taken to get the diagnosis. I was asked to have a repeat MRI scan so that the MDT could be absolutely certain which treatment choixces to offer me. This was duly carried out in October and I had another outpatients appointment in early November to find out what would be recommended. Unfortunately, a few days prior to the appointment I was admitted to the hospital with acute pancreatitis - but nevertheless I attended the outpatients appointment anyway as it was so important.

Instead of being given my treatment options though, I was told to go away and get over the pancreatitis first before I worried about having cancer. Possibly the fact that the Consultant was not in clinic had some bearing on this ?

This was five weeks ago and I have heard nothin from the hospital since. So I've had a cancer diagnosis for three months now and I still don't have a treatment plan of any kind,nor any appointment to be given one. I'm now starting to feel rather depressed and despondent because I feel I've been forgotten. And I am starting to get very angry with the whole saga !

Five weeks ? Three months ? Hello .......... Is there anybody out there that knowa what they're doing ?

Anything else?

Can I just emphasise that this is a cancer diagnosis we are talking about, and not something trivial.

I'd also like to say that my pancreatitis treatment was excellent, a big thank you to all the doctors and the nursing team on Ward 20.

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Responses

Response from Milton Keynes Hospital

Thanks for your feedback. We're sorry to hear about your experience. The Patient Experience Team will be able to assist you further. Please call them on 01908 243181, Monday to Friday, 0900 – 1700.

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