"Nobody seemed to understand my husband's Motor Neuron Disease"
Posted by Wish13 (as ),
My husband was admitted to the RVI in August to be treated for a blockage. The nurse was told he had motor neuron disease. I asked if they would turn him over as he is unable to do so himself.
He was given an enema on the Saturday morning, when he had an enema I don't know if it's standard practice but he had to open bowels in bed.
He later asked for a urinal. The nurse went off and didn't come back for 45mins by which time he had to do it in bed.
He also had to ask for a drink of water, the nurse put it on a table and my husband asked for it to be given to him as he can't sit up of his own accord and she just tutted at him.
I don't think any of the staff knew what MND was as the same happened when a nurse told him to turn over when undressing him, he also wasn't pleased. My husband as discharged on the following Saturday in the early afternoon, he got home at 9.30pm. The staff told me 3 or 4 times that he was on his way then I was informed that the ambulance went to the wrong place. Two ambulances went for him at 3pm but wouldn't take him becuase he wasn't ready.
Despite being discharged in the early afternoon, RVI ambulances eventually brought him home and they said they were going to complain.