"I want to be involved in my husbands care"
About: Glasgow Royal Infirmary Glasgow Royal Infirmary Glasgow G4 0SF
Posted by Pioneer (as ),
When my husband became ill with cancer, I wanted to support him.
He wanted me to support him. Both of us felt that I was not included in any medical consultation. He had by this time had the same Consultant for 10 years, and I had attended many hospital visits with him.
he had undergone fairly radical drug therapy during which I supported him for many months.
However, the Consultant simply took the high ground and held it.
There was no attempt to get to know me, as the main carer.
There was no time given for me to ask questions.
The patient was the only person addressed during the interview.
Results were not discussed.
So my husband wrote to his Consultant, asking that I be included in his care.
So I wrote, telling the consultant what a difference inclusion would make to me if I could be included.
I feel very strongly that I am the next of kin - my husband has requested my inclusion, and yet still I am kept at arm's length.
I have now given up. Ten years is a long time to attempt to be heard.