About: Luton & Dunstable Hospital Luton & Dunstable Hospital Luton LU4 0DZ
Posted by Disgruntled
Just over a year ago I had noticed that my left eyelid was drooping more than usual during the morning and evenings. I am a 19 year old male with Congenital Ptosis caused by Marcus Gunn Jaw winking syndrome. The worsening ptosis had caused my eyelid to obstruct more vision than usual at periods when I was tired. I was referred to the consultant, initially I was seen by a trainee doctor who decided i should have blood tests. The consultant cordially agreed, I was told one of the results of the blood tests was deemed to be inconclusive. Subsequently I went to Moorfields hospital, London and was tested for Myasthenia Gravis. The tests came back negative. This had all been a 6-7 month long wait and the tests came back long before the following appointment! Finally the consultant sat me down and told me that the only option in this case was to have surgery, however unfortunately due to their prediction that an "overcorrection" would be achieved in the event of ptosis surgery they refused further treatment. The consultant then proceeded to give me a prescription for Optrex moisturising eye drops (I later threw this rubbish in the bin). I assertively told them that if surgery was the only option I would like to opt for it; at which point they still refused. I was completely unsatisfied with what the consultant had said, I felt it was unacceptable to say that obstruction of vision in my left eye was untreatable and I would simply have to put up with it. I requested a second opinion (something I have never done) and was told "I would be told the same thing!" 2 months later I attended a consultation at Moorfields eye hospital Bedford and was told at that appointment that they would operate without any further delay (via an anterior levator resection) 7 days later I had surgery! It is absolutely disgusting that I had to try to 'persuade' the consultant to do their job which they obviously couldn't do. I am glad I pushed for a second opinion, I generally have a good experience at the Luton and Dunstable the exception being with this particular consultant. Regards.