"Still waiting with same symptoms"

About: Dumfries & Galloway Royal Infirmary / Urology

(as the patient),

I had my tape inserted on sep 2013 and after the procedure I never felt right. I had urine infections one after the other and numerous antibiotics I asked for tape to be removed so they sent me for another op and told me they could only release it on one side but it didn't help. still same symptoms so sent me for scan and it showed I had a bladder stone so brought me in for another op and I asked for tape to be removed at same time. after op they said they couldn't remove tape as it was in my bladder. been referred to Glasgow hospital to get it removed but nearly a year later still waiting still same symptoms and on a permanent antibiotic. I wasn't informed of pros and cons.

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Responses

Response from Hilary Butterworth, IPIQ Officer, Patient Services, NHS Dumfries and Galloway

Dear Scottsmum

I was very sorry to read of your experience and the on-going problems you have with the bladder tape.

Every patient is treated as an individual and the on-going after care of a patient with these tapes are unique to each persons specific clinical condition e.g. previous bladder surgery, additional bladder problems. I am sorry but with the limited information I have available I am unable to specifically respond to your concerns or determine why there is delay in the appointment from Glasgow.

NHS Dumfries & Galloway take all concerns and complaints seriously. This unfortunate issue is obviously causing you worry and discomfort, I would like to be able to direct you to the appropriate specialist Urology team to explore the issues you raised more effectively. If you wish to discuss this please contact me via e-mail on hilary.butterworth1@nhs.net or phone 01387 272733.

Kind regards

Hilary Butterworth

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Update posted by Scottsmum (the patient)

I was seen by a specialist in Glasgow in Jan and had my previous op assement in march and was told I would be in and sorted before I went in holiday in may I had to get an antibiotic to take on holiday with me as I had another infection before I was due to go when I came back.

My docs surgery got in touch with Glasgow and told the hold up was because they were transferring to the new hospital. My doc has put me on a permanent antibiotic until such times I'm dealt with but I am sore and feel tired all the time just want back to normality as it limits things I can do and also leaking and having accidents.

Response from Hilary Butterworth, IPIQ Officer, Patient Services, NHS Dumfries and Galloway

Dear Scottsmum

This ongoing problem is obviously causing you great distress and affecting your quality of life. I note your GP has you on long term antibiotic therapy and I therefore has good insight in to the Urology Consultants future treatment plan for you.

Your GP is the best person in a position to contact the hospital on your behalf to ascertain what the delay in the Glasgow appointment is. The GP may also be able to determine if additional support with the Incontinence Nursing Service would be beneficial to help you through this difficult time.

with best wishes

Hilary

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Response from Hilary Butterworth, IPIQ Officer, Patient Services, NHS Dumfries and Galloway

Hello Scottsmum

You may be interested to know it is World Continence Week this week from 22nd to 28th June.

For practical support and advice you can phone 01387 244405 or contact staff by e-mail on dumf-uhb.Continence-Service@nhs.net

kind regards

Hilary

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Update posted by Scottsmum (the patient)

Will be seeing my doctor tommorow will ask him to see if he can get an idea what's happening as I feel as I have another infection again despite being on antibiotics

Response from Hilary Butterworth, IPIQ Officer, Patient Services, NHS Dumfries and Galloway

Hello Scottsmum

I am pleased to hear you are going to see your doctor.

With best wishes

Hilary

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