"intercranial hypertension botched lumbar puncture"

About: St Mary's Hospital

my partner was initially admitted in may 14 , she suffered with raised pressure in the head causing severe headaches , loss of peripheral vision , twitching , shaking and nausea. she was sent home after 9 nights with no proper treatment or diagnosis , they performed a C.T scan an M.R.I scan, with no conclusive results and her syptoms were treated with analgesics and motion sickness tablets.initially they suspected meningitis (on day 9 she received a lumbar puncture! LP) then as time went on they said it was labrinthitis .she was discharged after LP and sent on her way home with nothing but paracetamol some anti sickness and a quick goodbye.the same syptoms that she was admitted with persisted for 8 weeks , we were told they would in a case of labrinthitis but, would subside. No treatment could be given for this condition, so the family coped, she coped. a month or so after she was discharged she got the paperwork through from the hospital , the cause of admission was 'idiopathic intercranial hypertension', as you can imagine this came as quiet a shock as she was released with being told something much less sinister. A letter arrived stating that she was now under the care of a neurologist in Southampton which she couldn't see for some considerable time due to doctors annual leave , but the doc requested that an LP be done as it was not performed ? My partner and I were perplexed to say the least ! her syptoms subsided somewhat, and then gradually came back , next was a visit to the family G.P who on request to make an appointment to be physically seen and checked over by said neurologist in Southampton said he would "write a letter"-thanks doc now in January ,my partner has been admitted to st marys again with the exact same syptoms, severe headache , loss of peripheral vision, twitching and nausea. very disconcerting to say the least , the LP was asked for immediately and was performed the next day(day 2) , LP was performed incorrectly by registrar , no true opening or closing pressure was measured although a substantial amount of cerebrospinal fluid CSF was withdrawn 25 ml. Also a clear C.T scan,sound familiar? observations presented no obvious problems to doctors even though they were aware of her previous post 'diagnosis' of intercranial hypertension headaches persevered ,getting worse by all accounts , analgesics were supplied and by the 5th day consultant admitted he didn't know what was wrong and should wait for neurologist to visit on the 7th day . when the neurologist arrived he was disconcerted that the basic information of opening/closing pressure of CSF was not obtained a week ago and disclosed fears of permanent vision loss and incompetence of LP performing doctor , the risk now being some permanent vision loss and possibly an operation once we were in Southampton, where LP would be done "properly" as it was requested a week ago! as it stands at the moment my partner is still in st marys awaiting transfer a complaint has been made

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Responses

Response from Vanessa Flower, Patient Experience Lead, Isle of Wight NHS Trust

picture of Vanessa Flower

Dear Jobby

I was very sorry to read about the expereince of your partner, and the ongoing issues related to her care.

Unfortuantely without full details I am unable to comment further on your specific issues, and therefore in order for us to look into these concerns, if you have not already done so, please contact the Trust via the Quality Team who will happily get the relevant team to investigate your complaint.

In the meantime I have shared your feedback with the Clinical Directorate Management Team and I hope that your partner has now been transfered and is getting the appropriate treatment.

Thank you for taking the time to provide this valuable feedback, and I am sorry that the experience of our services has not been a positive one.

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Response from St Mary's Hospital

I was very sorry to read about the expereince of your partner, and the ongoing issues related to her care. Unfortuantely without full details I am unable to comment further on your specific issues, and therefore in order for us to look into these concerns, if you have not already done so, please contact the Trust via the Quality Team who will happily get the relevant team to investigate your complaint. In the meantime I have shared your feedback with the Clinical Directorate Management Team and I hope that your partner has now been transfered and is getting the appropriate treatment. Thank you for taking the time to provide this valuable feedback, and I am sorry that the experience of our services has not been a positive one

  • {{helpful}} of {{total()}} people think this response is helpful