"Coping with the unbearable"

About: Castle Hill Hospital / Respiratory medicine Scunthorpe General Hospital

(as a relative),

My sister was being treated for bronchitis/pleurisy in December 08. Following an x-ray at Scunthorpe General Hospital, she was told that she had terminal lung cancer and her condition was untreatable and inoperable. As well as coping with the shock, as she is 54, she was assured that further tests needed to be done. She was told they would be completed within the target of 14 days and then she could have an action plan for palliative care. This procedure began early Jan and to date she is still waiting to go into Castle Hill Hospital for the procedure. She has contacted both Scunthorpe and Castle Hill Hospitals to try and get information as to why there was a delay. She became over-wrought and distressed as no-one seemed to be telling her anything. We both contacted the MacMillan district nurse for Scunthorpe, and she managed to see the consultant on Feb 24. We hope my sister will have her procedure next week - but we are still not sure. This seems to make a mockery of the initial dramatic response to my sister's x-ray results. Her fears were ratcheted up and then she is left waiting for a follow up which did not happen. There are clearly problems with the communication processes between the two hospitals and between consultants and secretaries. My poor sister is somewhere in the middle!

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Responses

Response from Engagement Section Assistant, NHS Hull

Dear Ann2 We are so very sorry to hear of your sister’s experiences of delays in being seen at Castle Hill Hospital. We regret that unfortunately due to some communication problems with the Patient Opinion website this has only recently come to our attention. We are aware that our colleagues at Hull and East Yorkshire Hospitals Trust would like to hear from you if the difficulties have not been resolved and would ask you to contact their Patient Advice and Liaison Service on 01482 623065 or by email. NHS Hull is the organisation responsible for deciding how money is spent on local health services (also known as commissioning), ensuring those services are of high quality and meet local needs. Your own Primary Care Trust in Scunthorpe would also have a similar role. We value all feedback and the chance to learn from the experiences of the users of our services, so that we can make improvements. If you would like to discuss this further please do not hesitate to contact our Patient Advice & Liaison Service on 01482 335409 or by email. Thank you once again for taking the time to provide us with your views on services.
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