"regular appointments for methatrexate IM..."

About: Queen's Medical Centre

I have been attending ward C32 for 4 Methatrexate injections per fortnight since June 14th 2014 and I requested to change hospitals to Derby Royal on 24th July 2014. I was diagnosed with a complete molar pregnancy in on 19th September 2013, and was an inpatient in C32 for the D&C procedure. The procedure went as well as it could, and the care given for this was fine. Since then I have been looked after by Sheffield Weston Park Hospital, and we made the decision to start methatrexate injections because the molar tissue was re-growing. When I went back to C32 for these injections, there was a lack of people who had been on the course necessary to give the injection. Over the coming weeks I realised that there were 2 staff nurses able to give the injection and one training. Attending C32 every other day, I have various issues with the care overall on the ward, not least being surrounded by happy couples going home with their scan photos, which I of course didn't get, and as I am unable to try again for my first baby until a year has passed from the end of Methatrexate treatment, I wont get for a while. My main issues are: There is not enough staff trained in giving this injection. Either train more staff, or don't offer the service. I have since transfered to Derby and have had no problems whatsoever. Being made to wait for a long time. I understand that it is an emergency ward, and I am happy to wait. However, I asked for an appointment time, or when would be the best time to come in, but with the exception of the first injection, I was never seen within an hour and once I waited over 3 hours. Hospital parking is not cheap. Lack of basic customer care. I too work for the NHS and so I have an understanding of the level of service we provide. I did not get this level of service. I have a feeling it is due to staffing issues as everyone was very stressed and rushed, but still, I was ignored by everyone, noone smiled at me or came to say "sorry we have an emergency today, and you might not get seen for 2 hours, would you like to come back later?". Noone knows what a molar pregnancy is. I know it is a rare condition, but even on an early pregnancy unit I would have expected the nurses to know what it is. I had to explain it several times to staff nurses and even a locum doctor. I had to explain how it is different from an ectopic pregnancy, why it is treated with methatrexate, how it is just bad luck and not actually my fault and I am pretty upset about the whole thing. Administering of injection. This has always been up to the preference of the nurse at QMC. In Derby it is up to me. I have always felt like an inconvenience Believe me I wouldn't choose to have this treatment, it has impacted severely on my mental health, suffering the loss of a pregnancy and not being able to try again for so long. There is a lack of empathy and understanding, perhaps due to stress. I felt like I was such an inconvenience to everyone's day.

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Responses

Response from Nottingham University Hospitals NHS Trust

We are extremely saddened to read your feedback. Thank you for taking the time to provide such a detailed account of your experience which sets out a number of areas where we seem to have fallen short and can do better. We would very much welcome the opportunity to speak to you directly to discuss your concerns face-to-face so that we can listen to you, provide answers and importantly describe where we have either already made improvements or have improvements/changes planned which will improve the experience for our patients in the future. If you wish to do so, please contact me directly via email at Benita.Brear@nuh.nhs.uk and we can arrange to meet up at your convenience.

Response from Queen's Medical Centre

We are extremely saddened to read your feedback. Thank you for taking the time to provide such a detailed account of your experience which sets out a number of areas where we seem to have fallen short and can do better. We would very much welcome the opportunity to speak to you directly to discuss your concerns face-to-face so that we can listen to you, provide answers and importantly describe where we have either already made improvements or have improvements/changes planned which will improve the experience for our patients in the future. If you wish to do so, please contact me via email at Benita.Brear@nuh.nhs.uk and we can arrange to meet up at your convenience.

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