"My husband is losing the will to live"

About: Central Lancashire PCT / Community nursing St Catherine's Hospice

(as a carer),

My husband has received excellent care from the community matron at home! Also from the district nurses who still visit the house as he has terminal lung cancer. The nurses and doctors at Library Health Centre in Chorley have also helped him a lot due to his COPD. In 2006 he had a prostate operation at Chorley, because Dr Khatri at the Royal Preston Hospital found diskitus in his spine from an epidural. As a result he endured a lot of x-rays. He now walks bent over and has lost weight and height. We have no social life as a result. We have also had to visit St. Catherines Hospice in Lancs due to Lymphoedema in his legs. I now try to attend all check ups with him, but it is hard because I have to take him in a wheelchair. He is losing the will to live. We take each day as it comes, as he cannot have anymore anaesthetic, chemo or radium. He now has a lot of pain medication. We are both now distressed as he has been told he has months to live.

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Responses

Response from Julie-Ann Bowden, Clinical Quality and Assurance Manager, NHS Central Lancashire

Dear Spinning897 Thank you for letting us know about the excellent care your husband has received at home. It is reassuring to know that you are getting some support at what must be a very difficult time for both of you. Your comments towards the end of the posting do concern me as you say both you and your husband are distressed. Your husband's Community Matron will be able to provide support and advice as their role is to plan and co-ordinate ways of meeting all your husband's health and social care needs. If you wanted to talk to someone else about your situation, I would welcome the opportunity to discuss this further with you. You can contact me by email. You could alternatively contact the Patient Advice and Liaison Service at NHS Central Lancashire on 0800 032 24 24 who can provide confidential information, advice and support as well as signposting to relevant NHS services and other organisations.
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