"Waiting for an operation to remove a possible cancerous prostate."

About: Norfolk & Norwich University Hospital / Urology

(as the patient),

First referral at the beginning of April after a PSA blood test showed very high level.

Had appointment in April ( under a red flag). Hospital unable to do biopsy as my bladder would not empty. Sent home back to my doctors to get some alpha blockers which I had to take for 3 months, then have another PSA blood test (which was even higher(now 12. 1)).

Consultant sent me to the EASU to have a catheter fitted straight away as now my ureter was completely blocked by my very enlargef prostate. Had the catheter finally fitted at between 6:30 and 7pm. At 8: 30pm (my urology appointment was 2: 50) I was told as there was no bed available I was sent home and a District Nurse would call on me Saturday to check on me.

Got home at 9:30 and received phone call from the ward as I got indoors that they could not get hold of the district nurse and I have been given no information what is going to happen next. ie an operation to remove this large "growth" in my abdomen.

I am in constant pain unable to do anything house bound, feel that I have been sent home to die.

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Responses

Response from Tracey Wooldridge, Quality Improvement and Assurance Manager, NHS Norwich Clinical Commissioning Group

Dear Roy T

I am very concerned to read you are in such discomfort and pain and about your comments about the experience of care you have recently received. I would urge you to contact the hospital or, if you would prefer me to follow this up on your behalf please call me 01603 613325.

Thank you.

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Update posted by Roy T (the patient)

I have obtained a loan and have decided to go private so I can get treatment asap.

The irony is that I am now booked in for the opp this Sunday (at Norwich)

I could not stand another week and been unable to talk to anybody who knows what is going on.

Response from Tracey Wooldridge, Quality Improvement and Assurance Manager, NHS Norwich Clinical Commissioning Group

Dear Roy T

I am sorry you feel you have had to take this form of action but wish you a speedy recovery from your operation.

When you are feeling stronger, if you wish to talk through this with me, my phone is above.

Best wishes

Tracey

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Response from Janice Bradfield, Senior Communications and Membership Manager, Norfolk and Norwich University Hospitals NHS Foundation Trust

Dear Roy T

We are very sorry to hear about your distressing experience and the lack of information about how your care would proceed. If you would like to speak to someone about what happened or make a complaint, please contact our Patient Advice and Liaison Service on pals@nnuh.nhs.uk or telephone 01603 289036. Your feedback will be passed to the urology department.

Kind regards

Janice

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