"my son's lack of care and support"

About: NHS Grampian

(as a parent/guardian),

My son is intolerant to Milk, I have visited doctors in Moray several times for help as he started screaming during feeds, feeding less and becoming unsettled. at first I was told to try different formulas and bottles, then I was told it was a stage babies went through, maybe it was a virus and would pass so persevere, I then had a diagnoses of reflux which is what I had been say since he was 6 weeks old, I was finally given gaviscon and saw another GP who diagnosed colic which I did not agree with, then I went back as the gaviscon stopped working and was told there was nothing more they could do.

I was denied to have my son referred to the paediatrician so had to wait to see the dietician who then said the symptoms I had been telling the doctors were that of an intolerance to milk, we changed milks and it made a difference but my 4 month old stopped gaining weight and began to feed even less

so took his to A&E who said he had an inflamed belly and was very sensitive to milk so prescribed a new one. at no time have any of the doctors given my son the help he needed, being told to persevere with it as its a stage then being given diagnosis of colic because they can't figure it out but it feels like they don't make the effort to. I was driven to PND because of the lack of help being received, no matter how much I went back, I got nowhere. I hope no other parent has to go through this situation and they do have a baby that has an intolerance or allergy to milk then I hope they receive better care and treatment than we have. my battle is still going and my son still isn't getting the service he should, especially as he is a baby,

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Response from Linda Oldroyd, Nurse Consultant Patient Safety and Experience, NHS Grampian

Dear parent

Thank you for taking the time to provide this feedback about the difficulties you have encountered. It must have been a very trying time. If you are still not receiving the help and support you need with your son's feeding please get in touch and we will do our best to help.

In the meantime your story will be shared with the relavant senior managers to try to identify any service impovements which might be required.

We are grateful to you for taking the time to tell us about your experiences. On behalf of NHS Grampian we apologise for any shortful in your care and the care of your son.

I can be contacted directly by email loldroyd@nhs.net or by telephone on 01224 224923

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