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"Mesh complications ignored!"

About: Endoscopy Unit / Vanguard Endoscopy Unit Ninewells Hospital / Colorectal Ninewells Hospital / Gynaecology

(as the patient),

After several years of having stomach pain and several hospital admissions where they diagnosed ‘constipation’ to be the issue, I am now finding out that this has all been caused by having a mesh implant for POP around 10 years ago. 

At the time of going in for surgery for my triple POP I was under the impression that mesh was already banned in Scotland. On the morning of my surgery the surgeon explained they would be using a mesh sling. I then asked “Is mesh not banned in Scotland?”  His reply to this was that yes, it was indeed banned for many procedures but for my procedure it was still allowed and “100% safe”. I again asked if he was sure it was safe as I was concerned having heard of mesh injured women. This time he smiled warmly and assured me he wouldn’t be putting anything in to me that would hurt me. 

Now, several years later I have just found that my bowel problem (diarrhoea) for the last 6 months with accompanying 2 stone weight loss, is due to a narrowing of my bowel due to ‘adhesions’. My prolapse has returned too which is the first sign that mesh has failed. Yet it seems the NHS are reticent to admit the mesh has failed and is causing this issue. I was referred for the wrong scan (which I waited 8 months for only to find out that it was the wrong scan) and sent to the wrong clinics too. 

My GP seems to only want to deal with treating the ‘upset stomach’ and I feel like I am screaming into the void for someone to help me and to help me before this part of my bowel completely closes and dies! It’s already only as wide as a pencil as was found on colonoscopy and my fear is having to be admitted as an emergency and take my chances on whichever surgeon happens to be on duty. 

Why is it that the NHS don’t want to refer us for the help we need with mesh injury? Because they know it’s another legal case? This is MY LIFE and to be honest, I’ve so little quality of life these days as I’m pretty much housebound because of my pain and embarrassing trips to the toilet - if I were a dog they’d put me to sleep. 

We mesh injured people need action and we need action quickly in some cases. At 5’8” and now under 9.5 stones, I can’t really afford to lose much more weight! Yet I’m being left to take stool bulking meds to try and prevent me soiling myself. Is this really the standard of care we have been promised? 

I do have other health conditions too so struggling to cope with the complications of mesh injury on top of these is making my life unbearable. Still, I suppose if I end up taking my own life it’ll be one less legal claim for the NHS to deal with. Perhaps that’s the real strategy?

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Responses

Response from NHS Tayside about a year and a half ago
Submitted on 21/10/2022 at 13:13
Published on Care Opinion at 13:38


Dear Gwenni

Many thanks for taking the time to raise your story with us regarding your ongoing care experience.

On behalf of NHS Tayside, we would like to take this opportunity to sincerely apologise for the additional distress and anxiety this has caused you. We acknowledge how difficult and worrying this experience has been for you.

As all Care Opinion stories are anonymous, we are unable to make contact with you directly but would urge you to contact the Gynaecology waiting list office on 01382 740507, providing your name, address and CHI number (if known). This will allow us to make appropriate arrangements for a review appointment by the Urogynaecology team for further management of your ongoing condition.

Due to the nature of your concerns we would also like to conduct an in-depth review. If you are in agreement, it would be helpful if you could share your name and contact details with NHS Tayside's Complaints and Feedback Team in writing to:

Complaints and Feedback Team

Ninewells Hospital

Dundee

DD1 9SY

Via email: tay.feedback@nhs.scot

Or by telephone on: 0800 027 5507

Thank you and kind regards,

NHS Tayside

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Response from NHS Tayside about a year and a half ago
Submitted on 21/10/2022 at 13:13
Published on Care Opinion at 13:39


Thankyou for raising your concerns. We are so sorry to hear of your experience.

We would be keen to investigate the points you raise and provide you with further support and information.

In order to do so could you please direct your comments to our Feedback team as below:

Complaints and Feedback

Email: TAY.feedback@nhs.scot

Freephone: 0800 027 5507

Extension: 35507

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
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