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"Coarctation of the aorta"

About: NHS 24 / NHS 24 (111 service) Ninewells Hospital / Paediatrics Ninewells Hospital / Xrays and scans

(as a parent/guardian),

Initial phone call to NHS 24 regarding raised blood pressure (with 5 separate recordings noted) in our 16 year old daughter. NHS 24 advised phoning GP in the morning.

In hindsight, we should have presented at A&E. We feel totally let down by NHS 24 and have no faith in the system.

Phone call to GP surgery using redial continuously from 8am. Receptionist asked about phone call and triaged call to Advanced Nurse Practitioner. Difficulty in accessing GP as Advanced Nurse Practioner triages calls. After discussion and much persuasion, daughter was seen by a GP.

Raised blood pressure confirmed and heart murmur diagnosed. Referral to Ward 29, Ninewells.

Admission to ward 29 and various tests carried out, ECG, chest x-ray, bloods, ultrasound, echocardiogram, CT angiogram.

From the moment we walked into GP assessment bay (Ward 29) we were (and felt) cared for. The porters, radiologist and most of all the staff in ward 29 showed a kind and caring nature and were always so helpful. They could not do enough for us.

Dr Goldman is an outstanding Paediatrician (who just happened to have a speciality in cardiac conditions) and we knew our Daughter was in very experienced hands.

A diagnosis of Coarctation of the Aorta was confirmed and we were referred to Royal Children’s Hospital, Glasgow. An excellent standard of liaison (with Ward 29 ) continued through Paediatric Liaison Nurses ( the two Lyn’s!).

As a family, we wish to thank the staff of Ward 29 Ninewells Hospital and especially Dr Goldman.

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Responses

Response from Shona Lawrence, Clinical Governance Lead, Nursing and Care, NHS 24 2 years ago
Shona Lawrence
Clinical Governance Lead, Nursing and Care,
NHS 24
Submitted on 14/06/2021 at 16:56
Published on Care Opinion at 16:56


picture of Shona Lawrence

Dear Suzy123

Thank you so much for sharing your experience on Care Opinion. It sounds as though this has been a worrying time for you all. I hope your daughter is doing much better and that you, and your wider family, are taking time to recover from clearly what would have been an anxious time.

I'm sorry you feel let down by NHS 24. This is absolutely not the sort of experience we wish to hear from people who use our services. I am especially keen to learn more and to request a review of your contact with us. If you would kind enough to get in touch, I will ask senior staff to review your daughter's care. This will allows us an opportunity to understand if there is anything we could have done differently or better and to identify, if evident, any learning for us. I do hope you get in touch directly by phoning me on 07814 299944 or by email at Patient.Experience@nhs24.scot.nhs.uk

The care provided by Ninewells Hospital sounds exemplary and so person-centred, not only for your daughter, but for you as her family. I'm sure the staff on Ward 29 will be delighted with your kind words as will Dr Goldman. Such feedback is great to see, so well done to our colleagues in NHS Tayside.

I hope to hear from you further. In the meantime, I wish you all well.

Kind regards

Shona

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Response from Shona Lawrence, Clinical Governance Lead, Nursing and Care, NHS 24 2 years ago
Shona Lawrence
Clinical Governance Lead, Nursing and Care,
NHS 24
Submitted on 21/06/2021 at 13:23
Published on Care Opinion at 13:23


picture of Shona Lawrence

Hi Suzy123

Thank you so much for contacting me directly last week. It was a pleasure to speak with you and I was so pleased to learn that your daughter is doing well. I appreciate this has been an extremely worrying time for you all and there have been some challenges along the way.

As explained, with the additional detail you provided, I asked a senior staff member to review your call to NHS 24. I understand the staff member called you back today to discuss our findings. These show that our service to your daughter could have been managed better. Specifically, not all of the information you provided during the call was fully considered. Learning has been identified for staff and please be assured this will be progressed. I am very sorry that our service to your daughter, to you as her concerned Mum, and to your wider family, was not as it should have been.

I'm pleased we were able to clarify with you what information was shared by NHS 24 with your daughter's own GP. I hope you found this helpful.

I would like to thank you very much, especially at this time, for getting in touch with us. Such opportunities to review the service we provide to patients and callers enables us to reflect and improve.

I wish you all the best for the future.

Kind regards

Shona

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Response from Ashley Phillips, Senior Nurse/Advanced Paediatric Nurse Practitioner, Children and Young People Services, NHS Tayside 2 years ago
Ashley Phillips
Senior Nurse/Advanced Paediatric Nurse Practitioner, Children and Young People Services,
NHS Tayside
Submitted on 22/06/2021 at 09:48
Published on Care Opinion at 10:47


Dear Suzy

Thank you for taking the time to provide feedback with regards to your daughters visit to Ward 29. We value all feedback which families provide to us in Paediatrics and I was happy to hear that you and your daughters experience was a positive one at what can only be described as a very worrying and stressful time.

I will ensure that your kind comments are fed back to the team who were involved in her care. I am glad to read that your daughter is doing well and I wish you all the best in the future.

Kind Regards

Ashley

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