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"More understanding of autism is drasticly needed"

About: James Paget University Hospital

I had a very bad time at this hospital today. I tried to make sure nothing bad happened through lack of communication. I phoned up which I don't find easy so I could give advanced exlplantion that I struggle with understsnding things and being around people. I was told they would put that in my notes but they didn't. The people I saw had no idea how to deal with me. No one told me they were going to put some kind of camera down my throat I thought I was having a hearing test. Due to being autistic which is in my brain and I can't change I can't cope when they don't have the right crisps in stock so clearly when I think I'm there for a hearing test and they start talking about doing something completly different my brain doesn't accept it. It was an urgent appointment and I left without getting anything done because I couldn't cope with the situation and now I'm too scared to come back because I felt like no one had time to explain anything about what was happening to me. I am grateful for our hospitals I know I am very lucky and I don't want donald trump to steal them. But I have a develpmentle dissorder that makes me not be able to control my thinking and behaviour like normal people. You made me feel like rick in no way out when jessie got eaten by walkers and he had to chop her hand off then carl got shot in the eye. That is the best way I can express myself because I can't describe my emotions.

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Responses

Response from James Paget University Hospital 4 years ago
James Paget University Hospital
Submitted on 27/12/2019 at 12:43
Published on nhs.uk at 12:44


Hi. I am so sorry to see your post today. We have a very active nurse who has done some great work here to ensure that additional support is provided to those patients who need it. I'm so sorry that this didn't work in your case. We don't ever want you to feel scared. I will talk to Rebecca to see what she can do, but if you are able to email me direct and if you are happy for me to do that, I can pass your details on to her. I am sure that she can help out for your next visit to us. My email is ann.filby@jpaget.nhs.uk. Take care, and sorry again.

Ann Filby, Head of Communications

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