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Care Opinion

MS care

Posted By F.coconut

"MS care"

About: Forth Valley Royal Hospital / Neurology General practices in Forth Valley

(as the patient),

Approx. 8 years ago, I experienced unusual symptoms, lower left side hypersensitivity. 1st GP said I was a "medical mystery". I felt angry.

2nd GP referred me to a neurologist. Neurologist diagnosed transverse myelitis. She was brilliant. Symptoms eased off.

About  5 years ago, I suffered bouts of abdominal pain. 7 GPs said it wasn't connected to the transverse myelitis. I paid to see a private urologist, who found nothing in bladder and kidneys that would cause my pain.

Almost 4 years ago, during early months of covid, I suffered an episode of severe cramp in my right leg. NHS24 gave me a GP appointment for the following morning. The GP watched as I struggled to walk into the room. I explained my problem and also mentioned a small bit of intermittent pain in my right foot. They ignored the leg problem and said they would refer me to a podiatrist. 

The podiatrist phoned me soon after and said it sounded more neurological and referred me to neurology.

The neurologist phoned, got me seen and scanned and diagnosed MS. The staff who were there for my 1st scan were not pleasant. Very matter-of-fact and not very caring. Everyone, ever since, in the neurology dept. of FVRH has been brilliant. I've felt well looked after and listened to.

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Responses

Response from Caroline Logan, Person Centred Co-ordinator, Nursing, NHS Forth Valley 2 weeks ago
Caroline Logan
Person Centred Co-ordinator, Nursing,
NHS Forth Valley

Submitted on 30/04/2024 at 16:21
Published on Care Opinion at 16:21

Dear F.coconut

Thank you for sharing with us your care journey over the past few years and the difficulties you have experienced in gaining a diagnosis through your GP and at the hospital.

It is always difficult to read when our patients feel we have let them down and in your case over a lengthy period of time. It is never our intention to cause you any further discomfort or distress when trying to obtain a diagnosis.

I note that you have now been given a diagnosis and hope this provides you with an understanding of why you have been feeling unwell and a plan is now in place to support you. I am disappointed to read that staff were not pleasant to you at your fist scan but moving forward you have nothing but good things to say about the Team which I will share with them.

If you would like to get in touch with me and share which GP practice you attend, I would be grateful as this will allow me to share your story with them. You can contact me on 01324 566162 or alternatively by e-mail fv.patientexperience@nhs.scot.

I hope you are well and wish you all the best.

Caroline

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