"Frustration"

I have Chronic Lymphocytic Leukaemia.

The whole process dealing with Frimley Hospital Haematology department has been unacceptable.

Recently after my consultation with my Consultant, I was told that my medication - acalabrutinib, would be increased to 2 a day.

All my medication is getting low, and needs to be replaced, but my Consultant told me she would sort it out.

No answer.

Previously I had been informed that the medication would be delivered by Boots the Chemist.

I have had no messages regarding this service.

So I send my Consultant a message to say how many tablets I had left, and would they be delivered by Boots to my home.

No answer.

So I rang the MacMillan Nurse help line, same question, same answer - leave it with me I will look into it.

No answer.

I have now emailed the MacMillan Cancer Navigators with the same question.

No answer as yet.

So what am I suppose to do? Wait until all my tablets have gone?

I informed my Consultant that I needed more tablets, giving her the obligatory 2 weeks notice before I run out.

I am in a state of increased stress and anxiety.

For someone who has barely taken a paracetamol in her life, I find this lack of any communication hard to fathom.

There seems to be no "tick sheet" to ensure each patient has had the correct follow up. Be it consultations, appointments, blood test, CT scan and of course medication.

At every stage of first being told I now need medication I have had to chase Frimley Park Hospital.

I am of an age when I shouldn't have to cope with this.

Should I now be asking to transfer to another hospital that treats Leukaemia patients with some respect.