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"How we were told my mum had 3 months to live"

About: Royal Cornwall Hospital (Treliske) / Acute Medical Unit (AMU) 1 & 2 Royal Cornwall Hospital (Treliske) / Emergency Department Royal Cornwall Hospital (Treliske) / Oncology

(as a relative),

My Mum was taken to Treliske Hospital with symptoms of a stroke by ambulance. The care  mum was given in the Majors department was excellent. After a quick CT scan they found a mass on her brain - we were told she needed a urgent MRI to see what it was and Mum was transferred to the AMU ward overnight. It took 3 days to get the MRI which then confirmed mum had a tumour and the scans needed to be seen by consultants at Derriford Hospital.

We heard nothing until 4 days later when at first we thought we were taking mum home as an outpatient as we had been told if it's urgent we would have heard by now. My Dad stayed home to make sure the house was ready and myself and my brother went to see Mum.

The next thing was a Macmillan nurse came to our cubicle, pulled the curtain around the bed, asked mum a few questions and then said they were afraid it was not good news...Mum had an inoperable brain tumour and we were told that mum had 3 months to live...which you can imagine was such a shock to us as we had been given the impression Mum was being sent home under the care of Derriford as an outpatient.

Surely when being told such devastating news there should have been a room for privacy - not a blue curtain, with 3 other patients clearly hearing our news and upset.

We were given a leaflet and we left the hospital an hour later - knowing we'd be going home to break the news to my dad.

Sadly my mum died 3 months later, but during those months the one thing mum kept mentioning was the way we were told the news, mum hated the fact her children had to hear this behind a curtain.

I would hate the think other families to go through the same and would like the hospital to consider how and where news like this should be broken.

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Responses

Response from Jess Saunders, Patient Engagement and Feedback Coordinator, Royal Cornwall Hospitals NHS Trust 3 weeks ago
Jess Saunders
Patient Engagement and Feedback Coordinator,
Royal Cornwall Hospitals NHS Trust
Submitted on 10/04/2024 at 13:35
Published on Care Opinion at 13:42


picture of Jess Saunders

Dear aradt63,

Thank you for taking the time to share your story with us. Firstly, please allow me to offer my condolences for you and your family's loss. I was saddened to read about your and your mum's experience when being told such devastating news. I cannot imagine how this made you feel, especially at a time when your family needed privacy to come to terms with the news you had been given and this was denied due to the environment you were in. Please accept my apologies that this was not the great care that we as an NHS Trust strive to provide.

I am disappointed to see that you also experienced delays in receiving information regarding your mum's condition and that your dad was not present when the news was delivered.

If you would like to raise your concerns formally, please contact our Patient Experience Complaints Team using they details below. The team will ensure that your mum's experience is investigated fully and that answers are provided by the services in question:

Tel: 01872 252793

Email: rcht.patientexperience@nhs.net

In the meantime, I will share your story with the AMU team so they can reflect on your experience and consider how they can prevent this from happening again in the future.

Very best wishes to you and your family,

Jess

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Update posted by aradt63 (a relative)

Hi Jess,

Thanks for your response to my story, to be honest it wasn't about wanting an investigation or making a formal complaint, it was more to raise an awareness and to give feedback to perhaps make improvements for other families that receive such news.

I appreciate the AMU is a very busy department and after being there with mum for 7 days the team did amazing to keep up with the constant churn of patients, the nursing team were lovely and did the best they could with so much demand.

It was just the lack of timely information and how we were told the news about mum that was the main issue and if any changes could be made from me raising this issue and creating an awareness on how it affects the patient and family then that's all I would hope for so other people do not experience the same.

Thank you.

Response from Jess Saunders, Patient Engagement and Feedback Coordinator, Royal Cornwall Hospitals NHS Trust 2 weeks ago
Jess Saunders
Patient Engagement and Feedback Coordinator,
Royal Cornwall Hospitals NHS Trust
Submitted on 11/04/2024 at 10:45
Published on Care Opinion at 16:29


picture of Jess Saunders

Hi aradt63,

Completely understand that you may not want to make a complaint and Care Opinion is a great place to leave our Trust feedback without going down a more formal route so thank you for using the site.

I will make sure that the team on AMU are aware of your further positive comments about the staff which I am sure they will be very pleased to see.

Very best wishes,

Jess

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