This is Care Opinion [siteRegion]. Did you want Care Opinion [usersRegionBasedOnIP]?

"Incredible work of those in the long covid clinics"

About: New Victoria Hospital / Breathing and lung problems (Respiratory) New Victoria Hospital / Pulmonary Rehabilitation NHS Lanarkshire / Long Covid Rehabilitation

(as a service user),

I became ill with covid in 2021. I was hospitalised with covid pneumonia . On release from hospital I felt left to my own devices . There was limited rehab. I left hospital with damaged lungs. I then noticed other symptoms. My voice went. It was croaky and stuck on one note. It had no power. I had chronic fatigue. I had difficulty walking as I had issues with my joints. My hearing was also affected . I had difficulty locating sounds and hypersensitivity . For a year I felt at a loss.  I got a diagnosis of long covid .  I felt very alone. There were no support groups . I lost contact with my work . I had become a hermit . I was scared of going outside in case I caught covid again .  I was unable to play with my young children . Most of the day daddy slept . Short tempered due to sound triggers . There seemed little hope and at times I questioned the point of carrying on . I could see no route out . 

Then long covid clinics opened . On the back of my first meeting with Jen I  was given six referrals . One by one I was being seen by healthcare professionals.

My difficulty walking was due to issues with my tendons . That was first to get fixed . I then started voice therapy with Moira . I had been a trained actor but I didn’t know how to fix a damaged voice . Week by week I could hear my voice slowly return until I no longer needed any sessions . It was incredible as I thought I’d lost my voice forever . 

Online group long covid sessions were set up but they weren’t for me . Many of the participants had given up . I’d decided I was going to fight . 

I began to get lung and heart scans . The long awaited MRI and CAT scans were happening . My lungs were damaged. Scar tissue.  

I then began to get specialist respiratory rehab . One of the issues identified was that my ribs weren’t working properly as I was breathing . I began physio for this which made a real difference. 

In the last year I stared occupational therapy with Fiona . When I first started I thought I’d never be able to work again and thought the seasons would be pointless . Fiona gave me belief . I had sessions where I was down and defeated but she gave me strategies to help . I then had the fight with my employer to get back to work . I was now disabled and would need additional support . Fiona helped me traverse that horrible maze where again it can be easy to give up .  I’ve been back working for over a month now . I’m starting part time initially .  

Were it not for Jen , Moira and Fiona then I’m not sure I’d still be here . I was so low and had given up . The long Covid clinic was the key to everything for me .  I’m still not the man I was three years ago physically but mentally I am tough . I have been equipped with strategies and exercises to help navigate life as someone with long covid . It’s a new condition and we are still learning . It is vital the incredible work of those in the long covid clinics is recognised . It is no understatement to say it saved my life . For that I will be forever thankful . I could be a father again to my children , a husband , a brother , a friend and a son . I’d lost all those things . Thank you . 

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Abi Campbell, Clinical Service Lead - Covid Rehab Team, NHS Lanarkshire last month
Abi Campbell
Clinical Service Lead - Covid Rehab Team,
NHS Lanarkshire
Submitted on 20/03/2024 at 17:15
Published on Care Opinion at 17:15


picture of Abi Campbell

Dear oscarsj63,

Thanks you so much for sharing your experience of our Long Covid Rehabilitation pathway. I'm reading this at the end of a busy day and I can't tell you how encouraging and inspiring it is to hear of your fight for recovery and how the team have helped you.

I will be delighted to share your feedback with Jen, Moira and Fiona. Your story really is the reason they do what they do. By generously sharing your story, you allow us to celebrate with you - something we truly treasure.

Your experience exemplifies how difficult it can be to access and navigate the right place for the right care. This is particularly true in the case of Long Covid where you have so many symptoms all at the same time! It is gratifying to see how our team of different professions have been able to help you pull the pieces of recovery together.

Well done sticking with the journey - it's a long haul and definitely not easy. I wish you so much success and hope for the future.

Many thanks,

Abi

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde last month
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 26/03/2024 at 11:54
Published on Care Opinion at 11:54


picture of Nicole McInally

Dear Oscarsj63

Thank you for taking the time to share your story. I appreciate that this has been an incredible difficult journey for you and your family. As Abi has said, your story is encouraging and inspiring. Hopefully, it encourages people to access the long covid clinics. I am sure that the staff will really appreciate your feedback.

Best wishes

Nicole

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
Opinions
Next Response j
Previous Response k