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"Waiting on an Insulin Pump"

About: Outpatients Services / Regional Diabetes and endocrinology centre

(as a service user),

So, I have been on the waiting list for an insulin pump for nearly 2 years now. After my assessment I was offered a pump and chose the pump I’d like to have and then was told I’d have to wait for roughly 12 months. Not a problem at the time. I knew I may have to wait a while.

So 12 months came and went and never heard a thing, my dawn phenomenon seemed to get worse and I was told that the only way it would be fixed was with an insulin pump.

Finally in the September of 2023 I got a call to go for another assessment review…..at this I was told I may have to wait for another year for my pump due to all services now going through a regional hub at the Royal Victoria Hospital in Belfast. They were doing upgrades and referrals for new pumps would be next. A hi old be the start of December and no later than by December 2023.

It is now almost the end of January 2024 and I still have no word from the Insulin pump clinic. I am insulin resistant and had to go on to metformin as well as my insulin to try and reduce my insulin intake to make it easier on the pump when I receive it. I also don’t have hypo awareness and rely on my dexcom alarms to make sure I don’t have any bad hypos.

Why on earth in this day and age would anyone have to wait this amount of time (almost 2 years) for a peice of medical equipment that is so so needed? I have toyed with the idea of buying it myself, but the cost is just enormous. I’m at the end of my tether now. How much longer do I have to wait to finally get the level of normality my life needs and deserves? Can anyone give me answers please?

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Responses

Response from Joanne Quinn, Lead nurse, Endocrinology and Diabetes team, Belfast Health and Social Care Trust 3 months ago
Joanne Quinn
Lead nurse, Endocrinology and Diabetes team,
Belfast Health and Social Care Trust
Submitted on 25/01/2024 at 14:25
Published on Care Opinion at 15:45


Thank you for your comments.

In order to investigate the issues regarding your wait for an insulin pump can you contact me directly to discuss further.

My email address is joanned.quinn@belfasttrust.hscni.net

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Ian726 (a service user)

Thank you so so much for your speedy reply Joanne. I have emailed you privately and look forward to hearing from you. Again, many thanks.

Ian

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