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"A case study for fantastic support"

About: Victoria Hospital / Diabetes & Endocrinology

(as a service user),

I was diagnosed with Type 1 Diabetes earlier this year. However, as I write this I am 1 year on from when I first started showing symptoms. I spent three months living with undiagnosed, untreated T1D, was hospitalised for two days with diabetic ketoacidosis and suddenly had to live as an insulin dependent diabetic.

On the day I was discharged I was met at my ward by a diabetes nurse, who explained what Type 1 Diabetes was, how my body was no longer functioning, what a hypo felt like and how to treat it; and gave me just enough information about how to administer insulin injections so I could go home. 

She gave me a schedule of appointments I was going to have that week with both the nurses and the dieticians so everything felt less scary, knowing I would only be on my own with it for a matter of hours before I'd see a professional again. She also gave me a prescription for all the supplies I'd need and a folder full of information leaflets about everything I could possibly need: injections, risks, DKA, hypos, alcohol, exercise, Diabetes UK, emotional support, contact information for my clinic. I felt so taken care of and like everything had been thought about.

The next day I had an appointment with a nurse where I was shown how to fit a Libre sensor, and I've had one in my arm every day since. I think of all the people who were diagnosed before Libres were so widely available, and how lucky I was to never have to solely rely on finger prick tests.

Over the course of a three-week sick leave, I had (I think) three appointments with a nurse and three appointments with a dietician where everything about diabetes was explained to me in small doses, so I didn't feel overwhelmed. There were some pieces of information that hit me hard, particularly the risk of pregnancy, but I had a good support system, and I was glad that I knew the severity of the situation.

A few months in I started researching about diabetes, scrolling through pages and pages of the Diabetes UK website and social media of other T1Ds. I learned about insulin pumps and at a follow-up appointment with the dietician I asked about one, and she encouraged me to discuss it at my first endocrinologist appointment which I did, and was immediately referred for an insulin pump intake as I was managing my diabetes well and could prove I could carb count.

There was no need to push or argue my case, there was no resistance. I asked for something that would greatly benefit my quality of life, and the clinic agreed and referred me. I know diabetics who go to other clinics, and I know their experience is not so smooth. My clinic deserves to be known as a case study for fantastic support.

Currently, I am 8-9 months into being a T1D. I have regular appointments at my clinic, I'm notified in good time and reminded. I've had access to every type of care I need. Every doctor, nurse, dietician and other health care staff at the clinic have always been friendly, supportive, informative and gone at my pace.

I am about to receive a Dexcom G6, and I am on track for starting on the Omnipod 5 next year. That means that in less than 1 year I've gone from diagnosis to a tubeless hybrid closed loop system, at my request. Fife Diabetes Clinic is an incredible team and I know that this life changing diagnosis would have been so much harder without their care.

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Responses

Response from Denise Burns, Diabetes Nurse, Diabetes Service, NHS Fife 4 months ago
Denise Burns
Diabetes Nurse, Diabetes Service,
NHS Fife
Submitted on 11/12/2023 at 18:28
Published on Care Opinion on 12/12/2023 at 12:32


Thank you for taking the time out for give us giveback. This is heart warming. We know how good diabetes technology is and its great to be able to offer this without any barriers. I hope to see you at your omnipod 5 training.

If there's anything else we can help with please let us know. Thank you once again. This is the standard to strive to give.

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