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"Thanks to Heart Failure Team and GP Surgery"

About: Royal Devon & Exeter Hospital (Wonford) / Cardiology Topsham Surgery

(as a service user),

Thank you to The Heart Failure Team and Topsham GP Surgery

In November 2022 I was taken to hospital (the Royal Devon & Exeter) by an ambulance where I was diagnosed with heart failure. I was looked after by the acute medical team until my successful cardio-version in  early December. I have already written to thank the acute medical team for the great service I received while under their care. Thereafter, I was referred to the Heart Failure Team, first at Whipton Hospital and more recently at Exmouth Hospital.

I would like to thank nurse Cherry and Cardiology Consultant Dr Lovell and other members of the team for the great care I have received in the last six months.

I have been meeting the nursing team every month and Dr Lovell as required. In both cases I felt that great care was taken to listen to my story and my symptoms, to consider and explain treatment options and agree a treatment plan as well as any actions required from me. My ECG and blood have been regularly monitored and my medication adjusted several times to optimise my care. This has left me feeling well and very grateful for the care, attention and expertise offered to me. Being in heart failure can make both patients and other family members anxious but the care provided by the Heart Failure Team has left me feeling confident that I have received the best advice and care available, giving me the best chance of survival and I am very grateful for this.

I would also like to take the opportunity to thank my local GP team (Topsham GP Surgery) for their support throughout this process. Dr Kay has routinely checked my progress and contacted me when required, such as when my sodium levels dropped, while the nursing team have taken copious amounts of blood to check both renal and liver function. I have given a lot of blood over the last seven months and this has been done expertly both at the RD&E Phlebotomy Unit and by nurses at the GP clinic. Giving blood is never enjoyable but it can be done confidently, professionally and effectively, thus making the experience manageable for the patient and this was certainly my experience.

Like most branches of the NHS, I know that GP services are under great pressure right now. Indeed the earliest GP appointment locally is normally three weeks away. However, given my multiple challenges caused by the combination of a slipped disk and heart failure, I have found the receptionists and GPs (at Topsham Surgery) have done everything possible to support me when I was in crisis (especially acute pain caused by the slipped disk). This got very complicated as my pain medication reduced my sodium levels which caused problems for my heart failure treatment. When urgent attention was required, receptionists organised for Drs to call me and, when necessary, see me and, if necessary, referred me to the hospital. Although these events were traumatic at the time, I want to thank the reception staff and Dr Playfair, Dr Brittain and Dr Mohan for the careful, thoughtful, expert attention which they gave me at short notice. This made some very difficult situations manageable.

For the record, although I am on the waiting list for surgery, I am currently feeling fit, healthy and pain-free. I am also grateful to be alive with a reasonable chance of a good life for many years to come. This is in no small part thanks to all the healthcare professionals who have so carefully looked after me.

Please pass on my appreciation to everyone who has been involved in my care at both the RD&E and Topsham GP surgery.

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Responses

Response from Sonya Lucky, Patient Experience Officer (Eastern Services), PALS (Eastern Services), Royal Devon University Healthcare NHS Foundation Trust 9 months ago
Sonya Lucky
Patient Experience Officer (Eastern Services), PALS (Eastern Services),
Royal Devon University Healthcare NHS Foundation Trust
Submitted on 17/07/2023 at 09:35
Published on Care Opinion at 09:35


Dear Chris23,

Thank you for taking the time to share your experience. I am delighted to hear that you are so happy with the care you have received and would like to thank you very much for your positive feedback.

Kind comments such as yours are always gratefully received and are an encouragement to staff.

If you would like us to log and forward this compliment to the relevant staff of our hospital, please send us your details (full name, date of birth and Hospital/NHS number) along with the title of this feedback to rduh.pals-eastern@nhs.net and we will do so.

Kind regards

Sonya I Lucky

PALS office

Royal Devon University Healthcare (Eastern)

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Update posted by Chris23 (a service user)

Thank you for the response Sonya and colleagues. However, it reads as if no-one read my submission. First, it says that, if I want the feedback to be logged and forwarded to the relevant staff when I clearly state at the bottom of my submission that I would like the hospital to please pass on my appreciation to everyone who has been involved.

Then the message asks me to provide my name, date of birth and hospital number when all three are clearly stated at the top of my feedback. If I combine the two I would guess no-one has read my feedback and that the response was sent by a bot. This would be very disappointing given the effort I put into my very detailed feedback, not the mention the importance of the service I am providing feedback for.

As I am still very happy with the great care provided by the Heart Failure Team, it is not necessary to publish this response. Instead, I would like a human being to read it and respond while taking appropriate action with my original feedback.

Thanks in advance.

Response from Lisa Townsend, Patient Feedback Lead, Patient Experience Team, Royal Devon University Healthcare NHS Foundation Trust 9 months ago
Lisa Townsend
Patient Feedback Lead, Patient Experience Team,
Royal Devon University Healthcare NHS Foundation Trust

I take patient feedback and work with all departments at Royal Devon University Hospital NHS Trust to implement service change and improve the patient experience.

Submitted on 26/07/2023 at 11:05
Published on Care Opinion at 11:05


picture of Lisa Townsend

Dear Chris23

Thank you for taking the time to leave feedback. There appears to have been a misunderstanding. Please can I assure you that the response is not from a bot. I work at the Trust and your lovely comments will be shared with nurse Cherry, Dr Lovell and the rest of the team at RD&E.

The teams really do appreciate such detailed feedback, so thank you once again for taking the time to share your story.

I wish you well on your recovery journey.

Best wishes

Lisa

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Update posted by Chris23 (a service user)

For the attention of Lisa Townsend.

Hi Lisa and many thanks for the kind response. This is all very clear. It's true that I got confused because my original submission included all my personal details and a request that the feedback should be passed on. Then I received a response saying "if you want the feedback to be passed on, please provide you full name, DOB and hospital number. Therefore I concluded that my submission had not been read. Since then a member of the Care Opinion team has told me that all feedback is anonymised. While I fully understand that some patients would prefer anonymity, most do not, so it would make more sense to ask people up-front if they are happy for details to be passed on. In any case, no harm done. I am still feeling well and very appreciative of the care provided by the RD&E team. Thanks again.

Response from Lisa Townsend, Patient Feedback Lead, Patient Experience Team, Royal Devon University Healthcare NHS Foundation Trust 9 months ago
Lisa Townsend
Patient Feedback Lead, Patient Experience Team,
Royal Devon University Healthcare NHS Foundation Trust

I take patient feedback and work with all departments at Royal Devon University Hospital NHS Trust to implement service change and improve the patient experience.

Submitted on 26/07/2023 at 15:51
Published on Care Opinion at 15:51


picture of Lisa Townsend

Dear Chris23

Just to update further, I have forwarded your feedback over to the team and Lisa Lovedale, Lead Clinical Nurse for Heart Failure & Cardiac Rehabilitation has asked me to convey the following to you:

My name is Lisa, I’m the Lead Clinical Nurse for the heart failure service. I’d like to say a huge thank you for taking the time submitting feedback regarding your experience of being under the care of our Heart Failure Specialist Nurse Team. I have already forwarded on your feedback to Cherry.

We do aim to build a good trusting nurse-patient relationship with our patients, listening and good communication along with the clinical aspects to understand what is important and matters to patients. I was therefore delighted to hear how you have benefited from this, and that you feel you are receiving the best care and advice. Receiving your feedback was so pleasing, and a really lovely morale boost for the team

Thank you once again for taking the time

Best wishes

Lisa

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Update posted by Chris23 (a service user)

Thanks Lisa. Chris

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