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"I cannot live like this any longer - I need surgery"

About: General practices in Greater Glasgow & Clyde NHS 24 / NHS 24 (111 service) The Princess Royal Maternity Unit / Gynaecology

(as the patient),

At present, I am in the process of seeking treatment for procidentia (severe stages of a pelvic prolapse). I have suffered with earlier stages of this condition for a couple of years, however since January 2023 - my condition has became severe.

I have been attempting to seek support from my GP service since then, who have tried to be as helpful and efficient as possible. However, the treatment I have received has not helped in any way as of yet. They have tried a number of different temporary measures in order to relieve the pain and suffering I am living with at present, none of these methods have worked - pessaries have fallen out by the time I have used the bathroom once or walked to my car from the GP surgery.

My current condition sees me bleeding a significant amount from the vagina on a daily basis, causing rashes/breakouts to my legs, affecting every aspect of my life including my working duties, social life and relationship.

My life at this stage is non existent, having to put everything on hold as I am in severe pain doing the most simple of tasks, and even in pain sitting down/standing up.

My mental health has taken a severe dip as I am an active person usually, who would walk/run long distance as a hobby. I no longer have this luxury due to my physical condition. I do not smoke, drink alcohol and in a healthy BMI range. There are no factors on my part which have contributed to this however I am suffering with it every single day.

I have been told a number of different things from my GP and other health professionals I’ve spoken to regarding this issue. I have been advised that I need an operation to resolve the condition, however informed this would be a year and a half waiting time. I was then informed it was 8 months.

I contacted my GP service on a further occasion as I had difficulties passing urine on top of bleeding/pain etc I face daily and was referred to Gynaecology Ward the same day in the Glasgow Royal Infirmary.

I received treatment (another temporary measure) on which another pessary has been fitted. However the Consultant has advised that surgery is needed. Due to the waiting list I have been advised of a long wait time, I cannot live like this any longer and cannot accept that long a waiting time for surgery.

Prior to this issue, I was severely unwell toward the end of 2021. I contacted NHS 24 on this occasion, due to severe high temp, vomiting and unbearable stomach cramps - unable to move. NHS 24 call handler stated this was not deemed an emergency and refused me an ambulance. My husband was terrified for me and my physical health at this point, driving me to A&E straight away. I was immediately seen and treated promptly for Sepsis due to complications from kidney stones.

So just to put it into perspective, I would have died due the advice given - luckily I made it to hospital just in time to receive treatment, again no thanks to the NHS for deciding over a phone that sepsis was not a medical emergency.

I did not complain at the time as I was thankful to be alive and didn’t have it in me mentally or physically to complain, however due to issues I am dealing with now. Again being failed by my NHS - I feel I cannot let these matters go until I am taken seriously.

I need an operation to resolve my current physical condition - I cannot afford to wait a number of months as advised.

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Responses

Response from Isabel Traynor, Clinical Services Manager, Maternity, NHS Greater Glasgow & Clyde 12 months ago
Isabel Traynor
Clinical Services Manager, Maternity,
NHS Greater Glasgow & Clyde
Submitted on 17/04/2023 at 17:16
Published on Care Opinion at 21:44


Dear PaulineM1

I am genuinely very sorry about your condition and wait for surgery.

Please can you contact me directly via email at: Isabel.traynor@ggc.scot.nhs.uk with your personal details and I will investigate?

Best Wishes

Isabel

Isabel Traynor Lead Nurse Gynaecology

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Response from Shona Lawrence, Clinical Governance Lead, Nursing and Care, NHS 24 12 months ago
Shona Lawrence
Clinical Governance Lead, Nursing and Care,
NHS 24
Submitted on 18/04/2023 at 10:45
Published on Care Opinion on 19/04/2023 at 12:02


picture of Shona Lawrence

Dear PaulineM1

Thank you for sharing your experience on Care Opinion. I'm so sorry to learn of the challenges you have experienced and appreciate this continues to have a hugely negative impact on your health. Thanks for sharing such detail.

We are always keen to explore what happened in a patient’s journey of care as this allows us to better understand their experience. If you have not already done so, please contact our Patient Experience Team who will be only too pleased to assist.

Patient.Experience@nhs24.scot.nhs.uk

I see my colleague Isabel, from NHS Greater Glasgow & Clyde, has requested that you get in touch. I hope Isabel is able to assist you.

Take care meantime.

Kind regards

Shona

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Response from Nicole McInally, Patient Experience and Public Involvement Project Manager, PEPI, NHS Greater Glasgow and Clyde 12 months ago
Nicole McInally
Patient Experience and Public Involvement Project Manager, PEPI,
NHS Greater Glasgow and Clyde
Submitted on 19/04/2023 at 11:44
Published on Care Opinion at 12:38


picture of Nicole McInally

Dear Pauline M1

Thank you for taking the time to share your feedback. I see that my colleague Isabel has responded and asked you to get in touch.

I am very sorry to hear about the issues you have been experiencing with your GP. Just to let you know that GP practices in NHS Greater Glasgow and Clyde operate their own feedback and complaints systems and are not registered to respond to feedback received via Care Opinion and will not see your feedback. Therefore, can I suggest that you contact the Practice Manager to discuss your concerns about their Practice?

If that is something you might find difficult to do there is an independent service called PASS (Patient Advice and Support Service) who can help you to give feedback, raise concerns or make a complaint about any health service, including GP practices. It is free and entirely confidential. You can contact PASS on 0800 917 2127 or visit their website at Patient Advice & Support Service | Citizens Advice Scotland (cas.org.uk).

Take Care

Nicole

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