"Ongoing problems with adhesions and extreme pain"

When I was 30 years old after years of pain and eventually very heavy periods (requiring nigh time pads during the day), I was referred to a gynaecologist, who after carrying out a laporoscopy discovered I had stage 3 endometriosis. I ended up with numerous surgeries due to adhesions from my original surgery sticking to my organs.

To be honest suffering with adhesions has been worse than the endometriosis itself. I ended up being told I could not have any more surgeries for adhesions and got an injection from the pain clinic (after waiting for about a year). This only lasted about six months and the second time it was done it left me worse off as it did not work and burned a different nerve. 

For the following years I was given more and more painkillers. I am now on oxycodone which is highly addictive. I now have extreme pain on both sides left and right abdomen. I did have an operation by plastics to widen a muscle and give the nerves room but this failed and now I cannot even get a pain injection because this operation was carried out. I was told this when lying on a trolley actually  waiting for the injection last summer. 

In 2015 I was told that I would be better to get a piece of bowel removed and resected to avoid being treated as an emergency case if my bowel impacted. Unfortunately the consultant retired, (although I was never informed) and covid hit. Eventually when I met the new consultant who was very abrupt I was basically told I was too big to have the operation and by letter I might add. I was told I would have to learn to live with the pain.

Then I ended up with terrible pain on the right side of my abdomen and I was given a hormone patch, which did nothing for the pain and then told to use HRT patches until a hysterectomy was done.  I received a letter in January being told I was on the waiting list.

Then I received a call and told I was 53 on the list and my operation would be soon.  Today out of the blue I received a letter basically telling me that due to the adhesions on my bowel from an MRI taken years ago that i would end up with a colostomy bag and that this might not help the pain as there is no sign of what is causing the gynae pain. I told them the pain was the same as when I had an ovary removed.  I am still in agony and furious that yet again I am led to believe I am getting an operation only to suddenly be let down. Yet again I am being sent to the pain management which is now a waste of time for me as there is nothing they can do.

I am mentally at the end of my tether with the way that hospital has treated me. I was never even warned about adhesions when I was operated on in the first instance and really feel like suing them.

There has always been an argument between gynaecologists and surgical about who needs to see me as this has happened before. All I want is to not be in so much pain but they continually treat me giving me hope and then pulling the rug from me.

It is disgusting to be treated like this and just gets me more upset. I cant believe they are allowed to treat people this way.