"alzheimers"

About: Coventry And Warwickshire Partnership NHS Trust / Older people's mental health

(as a relative),

In my heart of hearts I thought there was a problem and our doctor referred my husband to the Loxley Unit at Stratford upon Avon in 2010. He was initially treated for depression and for a few months suffered unpleasant reactions to the medication. During this period he received fairly regular appointments at the Unit and eventually the problems settled down.

In September 2011 he attended an appointment for neuropsychological assessment and I was quite devastated by the very poor results in certain aspects of his symptoms. He was prescribed Donepezil and was closely monitored during the initial stages of taking this medication as, once again, some time was needed until certain reactions settled down.

He now sees the consultant twice a year but on the occasions I have telephoned for advice the secretary has always ensured that a consultant telephones me back and this has been most supportive.

It is a lonely road at times as the spousal role of our marriage evolves into one of caring but I am very fortunate that he surrendered his driving licence without any problem and is now happy to come out and about with me each day.

What was good: Regular monitoring and advice in the initial stages of new medication. Support from the secretary when I had queries.

What could have been better:

Perhaps now and again, if requested, the opportunity to see the consultant separately.

A notice board giving details of the local Alzheimers Association cafe meetings in our area (Patient care) Also details of the Guidepost meetings in our county (support for carers). There are others support groups I am still learning about but we find the cafe and Guidepost meetings very friendly and informative.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Julia Williams, Assistant Director - Experience & Quality, Coventry & Warwickshire Partnership Trust We are preparing to make a change

Dear Holly Jones,

Thank you for taking the time to provide us with a moving account of your husbands journey with mental illness, and the effects that this has had on your role within the marriage, and the loneliness that you face.

Your positive experiences of the service that you have received, will be shared with the relevant staff, and your suggestions on how the service could be improved, will feed into the redesign of the service, which is currently taking place.

If you would like to further participate in the redesign of the Age Independant Mental Health Services, for Coventry & Warwickshire Partnership Trust, either by 'sharing your story', and /or participating in Carer and Service User Feedback sessions, we would welcome your further contribution.

Thank you again for sharing your story, and providing us with feedback which will be directed back and acted upon within the service, and should you choose to take up the offer to participate further, please contact me on the following:

email address julia.williams@covwarkpt.nhs.uk,

or you can telephone our Customer Services Department (02476 536800) with your contact details, and I would be more than happy to provide you with further details.

Best wishes

Julia

  • {{helpful}} of {{total()}} people think this response is helpful