"absolutely discusting, no empathy, no respect for..."

About: The James Cook University Hospital

What could be improved

staff's attitude, people need to work out what grade of vunerable needs a side room. if a disabled child with no communication, septible to illness and infection.. recurring chest infections, awaiting surgery for serious weight loss, does not eat, does not drink, severe seizures, needs sleep when well so even more so when poorly does not need a side room I honestly don't know who will qaulifiy for one.

Anything else?

I have son who was taken in to James cook on 17th December 2012 because he had a sickness bug he also has medical problems which means he is very vulnerable and suffers from epilepsy so when he is tired the fits get worse. he has recently lost a lot of weight and does not eat or drink very well at all to the point where he is needing a gastrosomy. we have been tol finley would find it very difficult to fight off any illness or infection as he has no reseves left at all. the staff on ward 21 where informed of this information when he was first seen. the staff on ward 21 are aware of Finley's conditions schizencephaly, lissencephaly and are aware of the stress it causes him when he is woken and disturbed when he is getting much needed sleep as sleep is very rare with finely. the doctor came to see finely and woke him up, she kept the light low and she examined him quickly so he went back to sleep quite quickly, I was told just to keep giving him little amounts of fluid if he woke and I was happy for him temp and stats to be checked throughout the night. then sometime later the registrar came in and turned the overhead light on to examine finely, bearing in mind finely and I where sleeping. after leaving she returned and said they are doing nothing else for finely so he is free to go home. this not being a option as 1. he was still being sick but just sleeping 2. it was 12am 3. I live 15 mile away and don't drive, I said I would stay and got back into bed to go to sleep.. at 12.30 two nurses swung the door open and told me they were moving us to another bed. I decided if nothing else was to be done for him, I would arrange a lift. then I was told I couldn't leave because he needed medicine to stop him being sick. when I questioned the medicine a nurse squared up to me and told me she's up at 6am with her children as well. not the attitude I wanted at 12.30 am with a sick child...

Story from NHS Choices

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Response from The James Cook University Hospital

Thank you for your feedback . I am sorry that your experience of hospital care on this occasion was not a positive one. I understand that the Clinical Matron from Children’s Services has contacted you at home and discussed your concerns.

When children are admitted to hospital it is important that they are given a thorough examination and unfortunately when this is at night it can be distressing and disturbing to sleep patterns.

Where at all possible, we would try to nurse patients in an environment that met their individual needs but at this time of the year, the need for isolation facilities is high and sometimes difficult decisions need to be made that may result in patients being moved rooms. However, the way staff communicate and listen to children and families is very important in ensuring that parents are fully informed with what is happening and understand the reasons why. Your feelings have been shared with staff in order for them to reflect on the experience you had and to learn from it for future care.

Kind regards

Patient Relations