About: University College Hospital University College Hospital London NW1 2BU
Posted by kolokotronis
What I liked
What could be improved
I had thyroid nodule biopsy. No one was getting back to me with the result despite my numerous phone calls to the secretary. Almost a month later I was informed that my result is abnormal and I need to be seen urgently.
I was diagnosed with Thyroid cancer and required surgery. At the time of review with both Endocrinologist and Surgeon the USS report was not “on the system“. I was asked to have another USS urgently. When went to book it, the clerk advised that the report was on the system so I had to ask for copy and inform the consultant. I was then left to decide as to who much of my thyroid I would like to remove (total vs. partial). I found it extremely difficult to reach a decision without doctor’s guidance given that I also had to cope with psychological aspect of the cancer diagnosis. When I asked as to when my case will be discussed at the MDT meeting (as all cancer cases should), I was advised that that was not necessary as “we now what to do”.
Surgery was booked. I have made arrangement at work for sick leave. Suddenly, the consultant phones me to say that the surgery is cancelled as I might not need one. I was told that repeat USS+FNA will be organized. 2 weeks later I heard nothing.
I went to my GP to ask to transfer my care to an alternative hospital as it was almost 4 months since my initial appointment at UCLH and no progress with my treatment.
I was seen at Royal Marsden hospital the following week. Repeat FNA was normal. The slides from UCLH were reviewed and reported as normal as well.
In a way I was lucky that UCLH was so inefficient and disorganized. Otherwise my thyroid gland could have been taken for no reason with the need to take medication for the rest of my life. Let alone taking unnecessary risk of a neck surgery and its possible complications