"My son's post operative chronic pain"

About: The Tunbridge Wells Hospital / A&E and trauma unit The Tunbridge Wells Hospital / General surgery

(as a parent/guardian),

My son had a cyst on his spleen drained and removed May last year. 6 weeks later he had awful stomach pains and I took him to A & E. The pains came back about every 6 weeks up until Christmas.

By Christmas he was on eight different tablets but they didn't know what they were treating him for as nothing had been looked into. On our 7th visit to A & E within 7 months we refused to leave until something was done.

He had a CT scan which showed nothing. We have had some appointments since but no one knows what's wrong and they are putting it down to post op chronic pain. I am still pushing for answers. I have complained to both The Evalina where he had his op but has now been discharged and our local hospital Tunbridge Wells where all the A & E visits were. We have now got our local MP involved.

Each scan he has seems to get different opinions as to who looks at it so have now arranged for a private scan to see who is right. One said he had a fatty lump on his liver and a haematoma on his spleen, the next 3 months later said there was no lump on his liver but that the cyst had returned on his spleen and they were adamant it isn't a haematoma.

The surgeon also cut through his bowel during the op so we wondered if the problem was there. Our GP has been great, but the lack of care and compassion at both hospitals has appalled us.

My son is 17 and has spent the last 10 months in bed most of the time, not being able to go to college or have any sort of a social life. We have been banned from A&E even though we have been told he has stones in his appendix.

To turn up with a then 16 year old in pain and get told by a surgeon that its not his problem and that we should return to the Evalina. When I pointed out the pain he was in and then the Evalina was quite a journey away just said it wasn't their problem and that he would arrange a outpatient appointment with the Evalina which he then never did anyway.

I don't intend to give up. The operation was supposed to get him out of pain not make him worse.

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Response from The Tunbridge Wells Hospital

Thank you for taking the time to write your comments regarding your son's recent care and experiences. We are sorry to hear that he is still experiencing such discomfort and pain. We understand from your feedback that you are currently in the process of having your concerns looked into by the Formal Complaints Team at the Trust, however, if there is anything else that we can assist you with at this time, please do not hesitate to contact us at mtwpals@nhs.net or telephone 01622 224960. Kind regards The PALS Team, Maidstone & Tunbridge Wells NHS Trust (SG)

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