"I have got worse, not better which I believe is due to bad advise"

About: Royal Shrewsbury Hospital / Paediatrics Shropshire Community Health NHS Trust / Child and adolescent mental health service

(as the patient),

Shrewsbury hospital's paediatric ward told us not to get involved with CAHMS as they were not needed.

Originally they diagnosed my chronic stomach pain as 'constapation' and put me on a incredibly high dose of a mess to help which made me feel iller. Then they accused me of making it up, and then soon after said it was due to anorexia and then depression and after 1 year, which included an appointment with shropshire cahms who said I had no mental health problems, one psychologist spent 1 hour with me in Great Ormond Street and diagnosed me.

I have a mental health illness that means I cannot deal with pressure and the ward told my family to pressure me and expose me to this so I started getting better?

Obviously I got worse and now am in a BCH ward and have been for months!

I believe it could have been a matter of weeks but due to their actions I have got loads worse and still expect a long recovery.

(I have Pervasive Arousal Withdrawal Syndrome also known as Pervasive Refusal Syndrome)

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Responses

Response from Soma Moulik, PALS/FOI/Complaints Manager, Shropshire Community Health NHS Trust

Dear Elise

Thank you for taking the time to share your story on Patient Opinion.

I am really sorry to learn of your experience and the delay in getting a diagnosis and can genuinely appreciate your frustration. I noticed that your concerns mainly relate to Shrewsbury hospital paediatric service but you have also mentioned about your appointment with CAMHS and the diagnosis that was given to you. Unfortunately, we will not be able to comment on Shrewsbury hospital paediatric ward as this service is not provided by Shropshire Community Health NHS Trust but by Shrewsbury and Telford Hospital NHS Trust (SATH). However, with refernce to the comment you made about CAMHS, I have now taken this up with our CAMHS Manager and will get back to you soon.

You will appreciate that we will be able to provide a more objective response if you are happy to contact us with all your details. If you wish to contact us, please email me on pals@shropcom.nhs.uk or call me on 01743 277689, Monday to Friday (9am to 5pm).

Once again, I am really sorry to read your story and the difficulties that you have encountered and I look forward to hearing from you at your convenience.

Many thanks

Soma Moulik

PALS/FOI Manager

Shropshire Community Health NHS Trust

Tel: 01743 277689

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Response from Lisa Hill, Shrewsbury and Telford Hospital NHS Trust

Dear Elise

Thank you for taking the time to provide feedback about your care and treatment at The Shrewsbury and Telford Hospital.

Our aim is to provide the highest standards of care for every parient, every time and we are very sorry to hear your concerns about the care you recieved.

Your comments have been sent to the Clinical Manager for the department concerned.

As Patient Opinion does not share your contact details with the Trust, we encourage you to contact us so that we can look into the issues that you have raised in more detail.

The easiest way to do this is by calling our Patient Advice and Liason Service (PALS) ON 0800 783 0057 or visiting their office near the Main Ward Entrance.

They aim to: provide advice and support to patients, their families and carers; listen to your concerns, suggestions or queries; and, help sort out problems quickly on your behalf. If you wish to make a formal complaint then the PALS service will be able to provide you with more information about how to do this. You can also find out more on the Trust website at www.sath.nhs.uk/patient_information/complaints.asp.

Thank you once again for taking the time and trouble to provide feedback via the Patient Opinion website. We look forward to hearing from you so that we can look into the issues you have raised in more detail.

Patient Experience Team

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