"A nightmare . I wait to find out what they said..."

What I liked

Was sent to right position & kept informed what was happening by a very pleasant Nurse . There had been great problems regarding getting the appointment in the first place even though attend Cardiology / Neurology & A&E after Cardiac Arrest [ acute] having not been referred with Specialist test results & classic symptons showing years before .

Here [ the same problem rears its ugly head regarding delays & follow up with Tests ]The same concerns with Surgery [ not received urgent letter ] Whittington & UCH too . Lost monitoring appts in 5 hospitals when former GP s said didn't understand condition - GPs saying don't have to follow Hippocratic Oath . Is that because not fully qualified like Nurse who refused to take blood after delaying a week.

NB Security has manhandled here and elsewhere whilst asking for Managers usually admin who had disregarded Doctors wishes & because contracted in do nothing so call Security after telling person to leave . Last occasion Whittington A& E re acute kidney/ ortho/ neuro problem connected to heart &disability SBO / CFS fibromyalgia [ pain & paralysis]

Also most Tier 2 hospitals have no onjective research [ patient orientated] or set up & procedures for those with multi conditions usually chronic now becoming acute [ terminal?].As usual there will be severe delays not only with getting Test CT SAN but with Results & Follow up that the ad maladministrates because on remits from accountants. What could have been improved

What could be improved

Was impressed by the Specialist but so hurried I couldn't think . Thought acknowledged urgency problem to me but when staff went back to him regarding test & follow up took their side ..Experience says it is often technicians interpreting results - legal? not informing Specialists contracted in till next delayed appointment which in case of heart could be too late. .

Often admin try to discharge by giving appts with anyone in team which does not make reasonable sense .

It is unfortunate that often ground breaking medical work is let down by accountants directing a temporary admin with Doctors allowing a conflict of interest regarding public & private systems. Suspect it may effect mortality rates . With GPs with no Specialist knowledge or time to research shouldthey be holding the purse strings . Is this care in the community?

Anything else?

There needs to be a multuidisciplinary approach to the medical via the administration Otherwise chronic becomes acute. Research needs to be all depts & there needs to be bulit into procedures where patients with Multi conditions & disabilities transferred via the specialists from one appt & hospital to another where charging substitute needs to be taken on by separate NHS Dept & findings published . The Specialiasts should also take charge & direct & oversee NICE , Regulatory bodies , Research , A& E & NICE