"Disgraceful, if I return there I would like to..."

About: Royal Sussex County Hospital

What I liked

I received a reply concerning above on 12 Aug 2011:- they reiterate that my care is cut-off, and my needs are viewed as "demands", when it is through the steroid treatment that I now have "steroid-induced diabetes". The consultants in the sussex kidney unit, and lupus care, should have advised me about lethal combination of renal transplant and steroid induced diabetes before the treatment, which they did not and I cannot cope with this situation now.

They have abandoned me like an animal and made me a medical orphan. I have had to get private care from London Bridge Hospital. I should not have to pay for my care, as a tax payer, when my husband has made vast contributions for our nhs care personally - through giving me a kidney and saving thousands in care and tax wise.

This behaviour is utterly disgraceful.

Anything else?

There is lack of transparency at this hospital.

Story from NHS Choices

Do you have a similar story to tell? Tell your story & make a difference ››


Response from Development Officer, Brighton & Hove LINk

Sounds like you are in some distress about this situation and need some answers.

We might be able to help you stop things like this happening again. The Brighton and Hove LINk is a health and adult social care watchdog that works independently of the NHS and the government. We have the power to hold the people at the top to account for issues like this and have a good track record of getting changes made. Although we can’t take on your individual case, if these sorts of problems have happened to other people as well we can take it on as a priority and seek action. All we need is for you to complete a short ‘issues’ form to log this problem with us. Is this something you would like to do?

Contact me on community@cvsectorforum.org.uk for more information, and have a look at our website to see what other people have been telling us about local services http://bit.ly/prFDDD

  • {{helpful}} of {{total()}} people think this response is helpful