I have terrible "Chronic Fatigue Syndrome" / Malgic Encephalomyelitis, which makes me only have 90 Minutes sleep per night, which means that I permanently feel like a decomposed corpse. I have had this condition, now, for a quarter of a century. Ugh!
I went to my last GP for help with
1) Getting the right NHS Treatment,
2) Helping my DLA claim and
3) Helping me get 'Home-Help' + Personal Care assistance from Hull Social Services.
As well as not helping me with any of the 3 things I need, listed above he was also truculent and always talked to me as if I was lying, though he was careful not to directly use that word.
I've had to report him to the NHS Ombudsman try to get things put right.
If you have CFS / ME please keep telling your GP as I did, and if they don't help you or they sneer at you, as mine did, then please report them too. Otherwise we are going to get very very bad treatment - for ever.
"Struggling with chronic fatigue"
About: Hull Teaching PCT Hull Teaching PCT Hull HU1 3HA
Posted by Sleepless Chris-Hull (as ),
Do you have a similar story to tell?
Tell your story & make a difference ››