"Finding Care for Parkinsons"

About: John Radcliffe Hospital

(as the patient),

Feedback: When I first feared I had PD about 18 months ago, I contacted ParkinsonsUK to ask for information about which hospital(s) were "centres of excellence" in treating the disease. I was disappointed with the advice I received because I was basically told there weren't any particularly better than any others and I should just go to my local one. I actually asked this question on 3 different occasions thinking I had spoken with someone who was not well informed. So I went to my local hospital and was very disappointed with my 20 minute assessment and offer of medication. Fortunately I came across someone in the field who suggested a particular hospital and consultant whom I have now seen twice and who is excellent. The care over the diagnosis including a brain scan was impressive. The present climate in health care is to make information about alternative care available to patients. It is disappointing that ParkinsonsUK don't seem inform themselves about what is available or, if they do, that they don't make this available.

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Responses

Response from John Radcliffe Hospital

The Oxford University Hospital NHS Trust is currently reviewing historic comments placed on NHS Choices and we note you made a comment in 2011 which was not responded to. The Trust takes both positive and negative feedback recieved from patients, or their families, seriously and, whenever possible, we use any learning gained to improve the service we provide. Should you wish to contact the Trust regarding this comment or any other service you have received since, please do not hesitate to contact the Patient Advice and Liaison Service on palsjr@ouh.nhs.uk or telephone 01865 221473.

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