"Refused a diagnosis for Autism"

About: Lancashire Care NHS Foundation Trust / Child and adolescent mental health Royal Preston Hospital / Paediatrics

(as a relative),

My 4 year old son has been refused a diagnosis of having Autism even though his consultant has told me he has it. The consultant told me if they did diagnose him it wouldn't make any difference in his life, they've even said they've never met my son before, and they certainly have!!

I've got a lot of medical people on my side who agree with me that it's time he was diagnosed to get the right help he needs in life.

My son also suffers from glaucoma in both eyes and has gone through 23 eye operations so far, so that's even more stress for me and my son of course. I'm wanting to change consultants if I can and even speak to one of the PALS officers if I can because I think this is really, really unfair on my son and he (and every other child with a disability) deserves a diagnosis and the right care in life.

He is getting so behind in life and he can't even speak for himself, so that's very frustrating for him. I'm not giving up until he gets the diagnosis he deserves.

From an angry parent

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Sarah Jones

Dear 'parent of 2',

This isn’t something Lancashire Care would be involved in as it would come under another organisation so you will need to refer your query to the relevant acute Trust for them to respond.

  • {{helpful}} of {{total()}} people think this response is helpful