"Brain tumor.Tenterhooks at the age of 22"

About: The Walton Centre NHS Foundation Trust

(as the patient),

All i can say is i am currently being treated at the walton Centre for an acoustic Neuroma...I had my pre op at the end of April and am still waiting for a surgery date. I have been waiting for a surgery date since the 1st of Feb. I am tired of being on tenterhooks and not being able to plan ahead. they apparently could call me in "anyday".

In total I have been a patient at the Walton for 2 years and endured many many long hours in Clinics, waiting for consultants who are running late, having MRI scans and being told I would be having treatment, and then being told they wanted to wait and then being offered treatments I have already made clear I do not want.

Much as they are caring and professional at all times, they have never in my opinion gone "above and beyond". I have spent the last 18 weeks waiting and always doing the chasing. I understand I am not the only patient there, this is not a complaint, and in no way do I hold it against the walton centre, but I have a life as well as a brain tumor, and I am sick and tired of waitng. I would't mind if they kept me informed, but they don't. It was only upon calling the clinic that I discovered my surgeon was on holiday..it's not fair!

All the same, even after all the messing around and the gruelling treatment yet to come, I understand they are doing their best, and every single member of staff I have met there has been calming professional agreable and overall brilliant.So to all the Staff that have and will be caring for me...THANK YOU., Now sort me out so I can start living again!

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Response from Patient Experience, The Walton Centre NHS Foundation Trust

Thank you for taking the time to post your feedback. The Walton Trust has taken a note of your comments and has given this feedback to the relevant manager, and to take action where necessary. We are keen to develop our services and this information is helpful for us to contine to improve our patient experience. If you would like to provide us with any further information or feedback you can contact us directly at customer.careteam@thewaltoncentre.nhs.uk and on 0151 529 5517.

Kind Regards

Customer Care Team

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