"Lack of care"

Can I start with saying I am a nurse and worked in hospice in Scotland.

Husband ill with gbm4. Mobility bad in Dorset county hospital a few times. I felt that the care he received was shocking, apart from fortuneswell ward.

I have been banging my head off brick wall for months trying to get help. Joseph weld visited -we will transfer him there, physio and rehab and crisis package as I wanted him home. 

Yes he got phyysio twice a week, that is it! He could have got that at home. He was incontinent at hospice, This is due, as I understand because call bell was not answered. Then gave him a bottle he cannot use in bed, as I told them on numerous occasions.

So got him home. not eligible for care as not ill enough. He died 3 weeks later.

I feel that the hospice were not hands on enough.  I will get distress massage..somebody will come and sit with him. It didn't happen.

I dont want my hospital experience and hospice experience to tar my memories of my lovely husband. Just wish he had never been there.. wasted 10 days..he could have been at home. Just have the joy he was at home with his family..

Point of this is..don't want someone to go through this!

Love to all sufferring at this time xx