"Care of Parkinsons Sufferer"

About: Norfolk & Norwich University Hospital / Neurology Norfolk & Norwich University Hospital / Older people's healthcare

(as a carer),

My partner was admitted to hospital and transferred to a Ward. Initially he was put in an isolation room due to diarrhoea. Once this cleared up, he was put in another single room. This had its own washbasin in the room and an ensuite toilet. While there, he flooded the room twice through leaving taps running and I believe not being watched. After a couple of visits I discovered that some of the nurses were not giving him his medication on time. I spoke to the local Parkinsons ISW who contacted the Nuero Nurses, who in turn, contacted the Ward. A pill timer was given to some of them, but I kept going in and some of them still did not give him his tablets on time, claiming to me that they had lost the timer, so another one was given to them. In the 3 weeks I visited, only once did they confirm his 2.00pm tablet was on time to me. I think as he was not seen regularly, he fell and cut his forehead, requiring 8 stitches. He was discharged about a month later.

In February he was admitted to hospital following a fall and after lying on the floor for several hours. I thought he was asleep, but he was having a bad 'off' period due to another infection. This time, thanks to the Neuro Nurses, he was admitted to Dunstan Ward. He was unable to swallow his tablets, so patches were put on him for a couple of days. After this his Madopar was changed and also the timings of his drugs, to breakfast, lunch and teatime instead of 6.0am,9.00am, 12.00am,2.00pm and 5.00pm. When he has an infection, he becomes very agitated and confused, so was given quietapine, but this only lasted a couple of days.

The problem I find at this hospital is not getting information from some of the doctors. Every time I went in and asked to see a doctor in connection to my partners care, I was told they were having a meeting. I think surely during visiting hours they could make themselves more available to talk to relatives when the patient themselves cannot communicate?

Do you have a similar story to tell? Tell your story & make a difference ››