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Care Opinion

Help with seizures

Posted By MC82

"Help with seizures"

About: Crosshouse Hospital / Accident & Emergency Scottish Ambulance Service / Emergency Ambulance

(as a relative),

My wife has been suffering from seizures for almost a month now. We are waiting to get to the seizure clinic to see if they will do anything. Yesterday my wife had a seizure at a local shop. She hit her head and the staff phoned an ambulance. So she got to a+e and was taken in. The doctor that saw her and witnessed a seizure said she was able to bring herself out of a seizure and after a blood sugar test sent her home telling her not to come back if she has any more seizures. That was nonsense, my wife has no control over these seizures. If she did I dont think she would allow herself to fall and bounce her head off a solid floor.

So today at our kids parents evening as we were about to leave she went down again. Hitting her head on the floor again. This time things were different. When she came to a few mins later she had another. No one there could bring her out of them. This continued so we phoned an ambulance. By the time it arrived she had had 7 seizures and by the time they got her in the ambulance it was up to 10. The ambulance took her to a+e and that same doctor was on. The doctor did not see her just passed it on that according to the doctor my wife could control these seizures. So they have sent her home. What are we going to do if she has any more and wont stop. The paramedics gave her medication to stop them. We dont have anything at all. This scares the hell out of me.

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Responses

Response from Sharon Hammell, Head of Corporate Affairs and Engagement, Scottish Ambulance Service 7 years ago
Sharon Hammell
Head of Corporate Affairs and Engagement,
Scottish Ambulance Service

I am responsible for the development and implementation of the Scottish Ambulance Service's communications strategy: this includes staff communications as well as external audiences, including PFPI and media management.

Submitted on 10/10/2016 at 16:51
Published on Care Opinion at 18:47

Dear MC82

I was really sorry to read about your wife's ill health. This must be a very anxious and frightening time for you, your wife and your family.

I wonder if you might make a GP appointment to see if there is any further support for you, between now and the appointment at the clinic? In the meantime, please do not hesitate to call 999 if your wife experiences further seizures.

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Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran 7 years ago
Eunice Goodwin
Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team,
NHS Ayrshire and Arran

I respond initially to most of the posts and ensure they are passed to the appropriate team whether they are compliments, observations or grumbles. It is important to make sure all issues are addressed and I try to encourage that to happen for all the posts as required.

Submitted on 19/10/2016 at 13:02
Published on Care Opinion at 16:03

picture of Eunice Goodwin

Dear MC82,

I would like to add how sorry I am that you and your wife are going through such a difficult and worrying time. I wonder if you have gone back to your GP and if you have now got an appointment for the first seizure clinic. I sincerely hope that you feel things have moved forward somewhat now.

If you would like us to look into the A/E situation, please contact me on 01563 826222 or email me at eunice.goodwin@aapct.scot.nhs.uk.

Kind regards,

Eunice

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Response from NHS Ayrshire and Arran 7 years ago
NHS Ayrshire and Arran

Submitted on 24/10/2016 at 09:10
Published on Care Opinion at 10:43

Dear MC82,

I have spoken to one of the Consultants in A&E and this is what he said.

"From your posting, it sounds like it would be best to have a word with you and your wife (over the phone or in person). I am happy to do so anytime, and if you wish to do so please contact Eunice to make the arrangements. I can double-check that the referral has gone through, and answer any questions that you may have. The wait before review after seizures is always a very anxious time.

Kind regards"

I do hope you get in touch MC82 and we can try to help.

Best wishes,

Eunice

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