"No-one listened or tried to help"

About: Ninewells Hospital / General Medicine

(as a relative),

In my opinion, the diabetes clinic hasn't changed in my 35 years of being diabetic and I lost my brother through neglect and no care of his diabetes, even though me and my mum kept mentioning, shouting, screaming, upset that he was struggling, as he had a learning disability.

My mum gave up years ago and left me to go on my own with my brother, but no-one listened or tried to help. They do the usual sit and look at you and say your fine, see a nurse.

I feel that the staff haven't a clue. I think that they've not educated themselves in diet or how can they advise a diabetic to eat healthy.

When I moved away, I didn't visit ninewells and did better on my own. Then I came back and I don't know if am coming or going with that department and now I’ve lost my brother due to the lack of care.

Do they not think in this day and age, we should all be more educated and show more care towards disability patients? They expected a person with a learning disability to call, which is ridiculous. They don't listen, absolutely disgusting.

Think it’s time to make it more public. In my opinion, I'd still have my brother here if they listened and done the job they have above their door and so called qualified for.

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Response from Alison Moss, Feedback Manager, NHS Tayside

Dear Scarlet12

Please accept my sincere condolences on the loss of your brother. I was extremely sorry to read of your experience of the Diabetes Clinic at Ninewells Hospital.

Within the Diabetes Service in Tayside we offer structured education for all patients with diabetes, either individually or within group settings. Individualised care is normally facilitated for people with disability or specific learning needs. Diabetes health screening recall is offered to patients every 4 to 6 months, which can be undertaken either within General Practice or the clinic setting. I am sorry that you feel your brother’s needs were not met.

I would very much welcome the opportunity to meet with you to listen to your concerns. This will allow us to learn from your experience and have the opportunity to offer you an improvement in your own care. If you would like to do this, I would be grateful if you could contact Alison Moss, Complaints and Feedback Team Lead on 0800 027 5507 (freephone number), or via email to feedback.tayside@nhs.net, and she will be happy to make the necessary arrangements.

If you would prefer not to do so, please be assured that your experience has been shared with staff for their learning.

Kind regards.

Susan Chisholm, Head of Nursing

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