"Unable to access new medication"

About: Forth Valley Royal Hospital / Cardiology Golden Jubilee National Hospital

(as the patient),

My cardiologist  has recommended this new drug for heart failure, he recommended that I was put on it as soon as it was approved for use. Approval was given by the Scottish medicines consortium in March this year. I contacted my GP surgery as soon as I knew it had been approved for use in Scotland asking when they would be starting me on it. They contacted my cardiologist who confirmed he wanted me on this drug, It is now August and I am still not being prescribed this drug as Forth Valley NHS have not approved it. It has been suggested that I contact a different cardiologist at forth valley royal hospital with regards to this new medication, ( I have never been a patient of Dr of this cardiologist) I have no doubt they are a competent Dr but I have no complaints with my current cardiologist and the golden Jubilee's care. This new drug showed fantastic results during clinical trials and showed a 20% reduction in mortality rates, It seems to be a post code lottery as to the care supplied by the NHS within Scotland.

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Responses

Response from Christine McGuinness, Communications Manager, Golden Jubilee National Hospital

Dear A173

We are sorry to hear about the issues you are experiencing.

As Patient Opinion is anonymous, we do not have any of your personal information. To help me look into this for you, I would be grateful if you could contact me to discuss this is more detail. I can be contacted on telephone 0141 951 5195 or by emailing comms@gjnh.scot.nhs.uk.

Kind regards

Christine

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Response from Pauline Marland, Person Centred Patient Experience Coordinator, Department of Nursing, NHS Forth Valley

Dear A173

Thank you for taking the time to leave feedback about your recent experience, I was sorry to hear of the difficulties you are experiencing accessing medication.

In order for me to give you a full and informed response I have shared your posting with staff who will be able to give me the information in order to answer your query.

In the mean time if you would like to contact me to discuss your concerns, you can phone me on 01324 566523 or alternatively you can email me on p.marland@nhs.net

Kindest regards

Pauline

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Update posted by A173 (the patient)

I have now started on this new drug, thanks to the help given by Christine, Communications Manager, Golden Jubilee National Hospital and Pauline, Person Centred Patient Experience Coordinator, Department of Nursing, NHS Forth Valley.

This shows that Patient Opinion website does work and can help get the right responses.

Response from Christine McGuinness, Communications Manager, Golden Jubilee National Hospital

Dear A173

Thank you for the update on your medication situation.

We're delighted to hear that you have now started on your new medication, and that we could play a small part in helping you with that.

Please let us know if we can be of any further assistance.

Best wishes from all of us here at the Golden Jubilee.

Kind regards,
Christine

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