"*Staff helpful and friendly in ..."

About: Queen's Medical Centre

(as the patient),

What I liked

*Staff helpful and friendly in most cases.

What could be improved

Our Baby was diagnosed as having "gastroschisis". This is where the intestine is formed out side the body and so a surgical proceedure is required at birth to correct and will require on average a 3 month stay in internsive care. We found this out at our 20 wk scan. After numerous calls, being left not knowing anything other than what you can find on the internet and 33 scans/ check ups later. Only at week 35 of the pregnancy did we get all the answers to our questions and tour of the fascillity. As it requires specialist people to carry out the proceedure it must be done under control. IE - induced. We were told that we need to call on the morning to see "IF THERE ARE ENGOUGH BEDS" in ICU for your sick baby. This morning we called and were turned away which we were prepared for. How ever now, they are looking at moving us to Sheffiled or Birmingham, or any where that is capable of the proceedure! Nottingham is already a Hour and a half journey and once again we are left again not knowing if accomodation (a room) will be availble for us to remain with the baby, post op.

We have learned that is common practice for staff to have to move babies as soon as they are strong enough to surrounding hospitals to free up ICU space asap as they simply do not have the required funding to cope with the demand.

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Responses

Response from Queen's Medical Centre

Thank you for your comments regarding the care you have received through Nottingham University Hospitals NHS trust Obstetric and Neonatal services so far. I am sorry that you have concerns regarding the care that you have experienced.

In response to your comments, following a referral from another centre a joint meeting including the obstetric and paediatric surgical team is held with parents which is followed up by letter, detailing all the information covered.

As identified in the information that you have supplied, an opportunity to visit the Neonatal Intensive Care Unit is offered, usually at a time most suited to parents, the condition of the baby and neonatal service activity so that you receive dedicated time and appropriate personnel to support your visit.

The neonatal service is sometimes full therefore negotiation with the obstetricians for the best delivery time occurs. However as part of this plan to make sure it is safe for the mother, baby and other babies on the Neonatal Intensive Care Unit a cot and bed for mum is usually identified in another centre where the expertise for the specific condition is also available. This is always with the intention of providing mother and baby safe quality care.

If you would like to discuss this further please contact our Patient Advice and Liaison Service on 0800 183 0204 or email pals@nuh.nhs.uk. We would be happy to meet to talk about your concerns.

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