"Pancreatic cancer"

About: St James's University Hospital / Hepatobiliary and pancreatic surgery

(as the patient),

Diagnosed in Huddersfield Hospital two weeks + ago

Referred to MDT (multidisciplinary team) and accepted by team at St James two weeks plus ago discharged from Huddersfield after two week stay, to wait appointment with MDT consultant

Received paperwork today for appointment in two days after I contacted specialist nurses three times(they were very helpful)

The information on todays letter is generic and very non specific so I am a very worried cancer patient that has no specific information about the length of wait for a Re-section or whether I will have to continue being patient while my tumour grows

I have been given pamphlets by the nursing team and some help with diet again at my request

So heres the nub I am the patient with a very serious condition and feel set aside worrying about any next steps and the urgency I feel of my personal needs.

I think it would be really helpful to have a named doctor as part of my handover

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Responses

Response from Leeds Teaching Hospitals

Dear JT1,

Thank you for taking the time to write to us.

I am very sorry to read about your experience.

I would happy to look into the matters you have raised, however, there is not enough information included in your post for me to investigate further, I would therefore ask that you contact our Trust’s Patient Advise and Liaison Service (PALS).

This would allow us look into the matters you have raised and contact the relevant management to see why there has been a delay. This would also allow us to see what lessons we could learn from your experience.

Please call our Patient Advise and Liaison Service (PALS) on 0113 206 6261 or alternatively email patientexperience.leedsth@nhs.net

Rosie

Senior Nurse

Patient Experience