"Parkinsons nurses who dont seem to care."
Posted by Amandrd (as ),
My Mother resides in North Ayrshire and prior to being moved from Southern General Hospital to Crosshouse Hospital, she was seen by a consultant every six months. My mother has had no contact with a Parkinsons consultant for three years.
In the last six months or more, my mother has lost a significant amount of weight, she is practically skin and bone. She was informed by a GP that he would refer her to a dietician.....she's still waiting. Meanwhile her medication is not working. She experiences more 'wearing off' than being 'on'. She is well for around one hour before her medication starts to wear off, resulting in no quality of life, not able to get out of the house, not able to go to the toilet, worries about not being able to swallow her medication. Her medication has not changed much at all over the years and is told by her Parkinsons nurse (when they actually bother to respond to her emails, texts, phone calls) that she's had all she can get and that's it basically. She resides alone and is terrified when she becomes unwell, which happens several times a day. When NHS 24 are called out they do nothing other than tell her to call the Parkinsons nurse. When she presses her panic alarm, the staff who respond tell her there's nothing they can do.
She is becoming increasingly frail and unwell. she fall's continually and is covered in bruises. She is only 58 years old.