"Delays fixing failed valve installation"

About: St John's Hospital / Urology Western General Hospital / Urology

(as the patient),

I would like to complain about the length of time I have waited to get a date for a procedure to check the failed device and operation for replacement of device due to a failure of a device installed by the NHS. I would like to say that I am not looking for compensation but just to have a quick response to my problem below which was not my fault.

I know my problem is not life threatening, but it is life changing to me I am now using six or more pads per day which is effecting my life style.

I had an artificial urinary sphincter valve fitted in November 2015 at the Western General Hospital. Everything was fine up to the beginning of April 2016 when I suddenly started leaking again. I called my consultant's secretary who arranged an appointment for early April 2016.

I attended the meeting with consultant and registrar, and was advised that the valve had failed by the loss of its fluid and that I would need a camera procedure (this was to be marked as urgent) to investigate the problem and them the valve would need to be replaced.

After three weeks of not hearing anything I phoned the consultant's secretary, to be advised that my name was not on any list and that they would look into why and process it.

After this my GP phoned and was told that the form had been lost between the registrar and the waiting list department and was being resubmitted as urgent. I phoned the secretary again last week, to be advised yet again that my name was not on any list and that they would be passing my details onto the doctor.

I have spoken to the valve manufacturer who said they would ask my consultant to try and have the inspection carried out quickly to confirm if the valve is faulty or not, and they also agreed to provide a new valve if existing one is proven faulty.

I would like to say that I feel the NHS should be pulling out all the stops for me to confirm if the valve has failed, and then if proven arrange the replacement operation asap even if they have to arrange it at another hospital.

The failure of this valve has meant that my life is on hold again I cannot do my normal activities without soaking pads in under an hour. I have a holiday booked for the end of May with my family and grand children which I will now have to participate in having to change pads frequently. The thought of this and my other problems is starting to effect my state of mind.

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Responses

Response from Jeannette Morrison, Head of Patient Experience, NHS Lothian

Dear Valve

I am very sorry to hear of your difficulities that you are experiencing and would be happy to look into this for you. To allow us to do this we would need some further information and would be grateful if you could please contact the Patient Experience Team:

Telephone: 0131 536 3370

Email: feedback@nhslothian.scot.nhs.uk

Post: 2 - 4 Waterloo Place, Edinburgh, EH1 3EG

I hope that we can help and look forward to hearing from you in due course.

Kind regards

Jeannette

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