"Inadeqate service for children"
About: Grantham & District Hospital / Paediatrics Grantham & District Hospital Paediatrics NG31 8DG
Posted by Wana84 (as ),
My son was referred to the hospital in 2013, because of ataxia, and a strange head shape. CT has been done, but had to chase the paediatric doctor for many weeks either getting an appointment or any results despite my son showed signs of intracranial pressure and there was genetically inherited hydrocephalus running in my family.
We got the second appointment 6 months later. We didn't even see the doctor, just her assistant who said she was seeing an improvement in my sons headshape saying this when she never even saw my son before. I asked the copy of his CT scan and all results, in case we need to show it somewhere else ( I planned to take her to other specialist in scaphocephaly, as they did not do anything or refer him anywhere else, she didn't even measured his head correctly).
I never got a copy of anything despite I have the right to get them. I got a letter a year later after a non-attendance of the following appointment at Christmas time, that my son is discharged, as I did not attend and they decided we probably moved out of the country, based on that. I'm not British born. Then despite the letter stated we are discharged, we got appointment due just few weeks later. But before the day came we got a letter they changed the appointment then another letter to say it's changed again. I had to plan the journey as we are not local and I don't drive. Had to buy train tickets weeks before, then getting a letter it had to be put on a later date. Then it was postponed again. And again. This went on for around one and a half years! I got god knows how many letters, at least 12 stating my sons appointment changed. Nearly two years and no one saw my son!
Now he is 4 and a half, luckily he is doing fine. His head is still misshapen. I was not looking at the letters anymore, so not attended the appointment which finally wasn't changed, after two years, as I would not trust in those people as they did nothing to help my son. Now I got a letter that my son is discharged. He was already discharged almost two years ago, so don't even understand why we got the appointments. Its a right mess in that hospital, I hope other little patients doing well.