"Issues with my Diagnosis"

About: East Surrey Hospital / General surgery

(as the patient),

I was diagnosed with hypercalceamia caused by an overactive inferior right parathyroid gland. The doctor came up with this diagnosis after doing all the necessary investigations that included blood tests, scans, urine tests, ECGs and x-rays.

They reassured me that the calcium levels would drop soon after the operation. I agreed because I didn't want to live on medication.

My operation was scheduled and I had the operation done the scheduled date.

After the operation the doctor[surgeon] came to see me and said the operation was successful but it was not what they expected and they reassured me that they had removed the affected parathyroid gland.

The anaesthetist who had put me to sleep came to see me and told me that it was a very difficult operation which took two hours and twenty minutes as opposed to the 30minutes I had been promised by the surgeon. This meant that I had to be under anaesthesia longer and obviously get more drugs as opposed to as I would in 30minutes. The surgeon did not explain this to me.

Post operatively my calcium levels did not go down contrary to what they promised me pre operative. The doctor kept giving me excuses about the calcium not going down.

They ordered another blood test one week post op and still the calcium levels had not gone down and they said at times the scan gets it wrong and that they were  going to order another scan.

I went for another neck scan over two weeks after my operation and the radiologist said he had looked at the old scans done before the op and he could not see any abnormalities on the scan and still could not see anything abnormal in my neck structures.

I went to see the surgeon the same day and said I could be having another one in my chest which could be causing the hypercalceamia and ordered that I have another scan to look for this abnormal parathyroid gland. Meanwhile my calcium levels keep going up and they have put me on a drug which does not agree with me. I told the doctor because I had this drug before and that it does not agree with me.

They said I just have to take it to bring the calcium levels down.

Now I am back to square one after an unneccesary invasive operation with cosmetic effects and difficulty in swallowing caused by scar tissue on my neck. The whole process affected me emotionally, physically and financially.

I would appreciate my case to be considered by the hospital authorities.

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Responses

Response from Surrey and Sussex Healthcare NHS Trust

Dear Saved,

I am very sorry to hear about the difficulties you have been facing. I would like to look into your circumstances in greater detail and see what can be done to help you. For me to do this I will need you to contact me on:

Jamie.Moore@sash.nhs.uk

With best wishes,

Jamie Moore

Divisional chief nurse

Surgical division

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