"HOME OXYGEN THERAPY."

About: City Health Care Partnership CIC / Home oxygen service

(as the patient),

After leaving hospital in April 2014 following severe breathing problems and a diagnosis of COPD. The consultant in charge of my case at the hospital had said I should have oxygen at home on a PRN basis (use as and when required). An oxygen concentrator was delivered to my home, which had a very long airline; this enabled me to get all around the house, including upstairs. The oxygen team had assessed me shortly after my discharge from hospital. Last September (2015) I visited my GP's surgery to see someone from the home oxygen team. She told me that the oxygen was to be removed from my home. I raised objections to this stressing its removal would severely limit my mobility around the house. Then she said, “The oxygen would not be removed if the patient didn’t want it removed. ” This reassured me. I also asked if removing the oxygen concentrator was part of an NHS, or local oxygen supply service cost cutting exercise, she said YES it was. I am appalled that I have been left without the oxygen concentrator and my mobility about the house reduced. I was given ambulant oxygen cylinders, but they are too heavy to carry and walk about the house. On being assessed for oxygen initially, the oxygen service said the concentrator would improve my quality of life and take the pressure off my heart, which is affected by the COPD. Did they forget about my 'quality of life' and the strain the COPD places on my heart when she ordered the removal of the concentrator? My GP and the long Term Conditions Team who take care of me are aware that the concentrator has been taken from me and do nothing to back me up. It's a complete disgrace.

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Responses

Response from City Health Care Partnership CIC

Dear Leftgasping,

Thank you very much for taking the time to give us your feedback. I really am sorry to hear about your experience and concerns and I would like to reassure you that oxygen and the equipment used to supply it are not part of a cost cutting exercise; our patients' needs are always put first. I am sorry that on this occasion you feel this was not the case. Your feedback is important to us and we would welcome the opportunity to discuss this with you further should you wish.

Please contact our Customer Care Team on Tel: 01482 347 627 or email chcp.customercare@nhs.net if you would like to talk about this.

Toni Goodman, operations manager for transition of care

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Update posted by leftgasping (the patient)

Thank you for your comments Mr. Goodman. As I said in my piece, I asked a Respiratory Nurse specialist dealing with my case, if the removal of the oxygen concentrator was part of a cost cutting exercise to which she replied YES. The head of the home oxygen service in Hull has a web-site in which she states how much money has been saved by removing oxygen completly from a given number of patients.