About: Leicester Royal Infirmary Leicester Royal Infirmary Leicester LE1 5WW
I have been a RA patient since 2007. There are some good nurses and consultants.
It's not often I see my assigned consultant and it always feels rushed. I've been off injections for months with heart and lung checks which seem fine.
I am really struggling with my joints, walking , sleeping due to pain and everyday tasks. I constantly feel I am chasing the staff to take action and if I could be left without treatment indefinitely.
This is not good enough.
I get more advice about my RA from other consultants and professionals.
Things go back to square 1 or worse because I am left without treatment or monitoring checks.
I dread coming off medication as it will take ages to get back on.
Surely, this should be monitored better. I am looking to formally complain about my care as I have been very patient over the years and have had enough.
Feel worse than when I was first diagnosed.