"Breast cancer after care"

About: Worthing Hospital

I can't fault my initial care nor my op - the problem came when I dared to get a second opinion. I was told initially that I wouldn't need chemo and then I was told I did. I went to my Doctor who recommended a second opinion and thanks to my husband's private health insurance I was able to go to the Marsden who advised against it. I therefore followed on with care at the Marsden who advised me to have a follow up surgical appointment at Worthing. They copied Worthing in at every stage. However when I went for this appointment in October none of these letters were on my file. I was quick to say to the specialist that this wasn't their fault although I found it less than satisfactory but apparently they were the one who asked me the questions- really??? When I went in they asked me how my chemo went and I said I didn't have chemo - the doctor kept reading from my notes and I kept trying to tell the doctor that I accepted it wasn't their fault but the situation was different and I needed to tell them why - when I explained the situation at the Marsden the doctor told me I was wrong not to have chemo (but apparently they didn't) and given my type of cancer - aggressive albeit stage 1 and triple negative- it was probably lying dormant somewhere (but apparently they didn't ) - i didn't want money all I wanted was an apology- The professor at the Marsden never said I was given the wrong information, they just said they advised against chemo but it was my decision, I never said Worthing was wrong, I just made a decision based on the advice of someone who is renowned as being the top of their field- to be told by someone that my cancer is probably lying dormant means that every time I feel an ache or a pain I wonder if it's come back - when are these people going to realise it is not the physical issues but the emotional and psychological effects of what they say that causes the most damage

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Responses

Response from Worthing Hospital

Thank you for this feedback. We are very sorry that your experience has not been up to your expectation. As this site is anonymous (unless patients choose to leave details) it is difficult for us to investigate why things have not been as good as they should be, and have the opportunity to respond to you. You could do this yourself if you wish, by calling the main switchboard at Worthing on 01903 205111 and asking for the department involved. Alternatively, you could contact the PALS office (Patient Advise and Liaison Service) on 01903 285032 or email them at palsworthing@wsht.nhs.uk and they will be happy to help you with this.

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