"Breast cancer after care"
About: Worthing Hospital Worthing Hospital BN11 2DH
Posted by Gill Drillsma
I can't fault my initial care nor my op - the problem came when I dared to get a second opinion. I was told initially that I wouldn't need chemo and then I was told I did. I went to my Doctor who recommended a second opinion and thanks to my husband's private health insurance I was able to go to the Marsden who advised against it. I therefore followed on with care at the Marsden who advised me to have a follow up surgical appointment at Worthing. They copied Worthing in at every stage. However when I went for this appointment in October none of these letters were on my file. I was quick to say to the specialist that this wasn't their fault although I found it less than satisfactory but apparently they were the one who asked me the questions- really??? When I went in they asked me how my chemo went and I said I didn't have chemo - the doctor kept reading from my notes and I kept trying to tell the doctor that I accepted it wasn't their fault but the situation was different and I needed to tell them why - when I explained the situation at the Marsden the doctor told me I was wrong not to have chemo (but apparently they didn't) and given my type of cancer - aggressive albeit stage 1 and triple negative- it was probably lying dormant somewhere (but apparently they didn't ) - i didn't want money all I wanted was an apology- The professor at the Marsden never said I was given the wrong information, they just said they advised against chemo but it was my decision, I never said Worthing was wrong, I just made a decision based on the advice of someone who is renowned as being the top of their field- to be told by someone that my cancer is probably lying dormant means that every time I feel an ache or a pain I wonder if it's come back - when are these people going to realise it is not the physical issues but the emotional and psychological effects of what they say that causes the most damage