"My story of my brother's battle with his drug addiction"

About: Nottinghamshire Healthcare NHS Foundation Trust / Addiction services (community)

(as a relative),

I want to share my story. Its beacuse it was so hard for me and my parents as we are deaf and we just cannot pick a phone to make a call to ask for a help or advice over my brother. However he is in porchester ward to get clean at the moment before he move to rehab which we are pleased will happen after more than ten yrs to put up with his addiction and his emotion. It was so chaotic to affect the family life but we never fault him as in the end of day its illness.

I am just angry that we dont have any support from drug unit to give us advice or whatever as there was problem with communication and they wont book an interpreter however I rather they use the money to spend on the people who need help to beat their drugs. They should have a service for the deaf, for the families of addiction or for the deaf people who have addiction problem?? We never attend any groups to help us to calm our emotion or talk to someone who has similar experience as us, we just get on with life as normal as we can.

But I would like to say thanks to the service for making my brothers dream come true to go rehab to sort himself out which he told me last week that he feel he got hope whereas before he feel like there is no way to get out from dark life he leaded which he hated but cant help himself. It’s first time I see my brothers face so lift up and smile and he is finally looking forward to start life over again but one that will be far better so many thanks.

Hope one day there will be a service for the deaf families or for the deaf who got addiction as communication is the key to help them to understand better or get more help from the service etc...best luck xxx

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Responses

Response from Julie Grant, Head of Communications, Nottinghamshire Healthcare NHS Trust

Dear Tatum

Thank you for your comments - I am sorry that this has been an issue for you. I have asked the Service Manager to respond to your comments and we will let you know soon about what we are doing in this area. I am glad to hear your brother is more hopeful.

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Response from Involvement Team , Involvement & Experience, Nottinghamshire Healthcare NHS Trust

Dear Tatum,

It’s so great to hear that your brother had such a positive experience on our unit and is now experiencing more hope in his life. However, I am disappointed that you feel the support was lacking for you and your family in meeting your specific needs. Our service has access to interpreters and BSL signers and we work closely with carer support organisations to ensure all our clients and families get information and support they need. I completely agree with you that communication with families is very important and clearly in this instance we failed to provide sufficient support for you.

In order to address this issue I have asked the Ward Manager and Modern Matron to contact our specialist mental health service for the deaf to ask for their advice and support in ensuring we are more capable of meeting the needs of people with hearing difficulties in future. I will also pass on your comments to our carers support partner agencies in the hope that they will explore opportunities to improve their provision for carers who are deaf.

Please accept my apologies and pass on our congratulations and best wishes for the future to your brother.

With Best Wishes

David Manley

Nurse Consultant (Dual Diagnosis)/Clinical Director Substance Misuse Services.

Nottinghamshire Healthcare Trust.